sábado, 23 de enero de 2010

5th European Conference on Rare Diseases ECRD 2010


Register to the 5th European Conference on Rare Diseases ECRD 2010 in Krakow

May 13, 14 & 15
Jagiellonian University - Auditorium Maximum


Special rates if you register before 28 February 2010!

Submit an abstract before 28 February 2010!

Click here to submit an abstract:
http://www.rare-diseases.eu/2010/Submit-an-abstract.

All other information about the conference:

www.rare-diseases.eu


The conference will be interpreted in:
English
French
German
Polish
Spanish

Themes of ECRD 2010

1.National strategies and plans for rare diseases
2.European Reference Networks and Centres of Expertise for Rare Diseases
3.Science from the bench to the bed side
4.Information and Medical Education
5.The European Committee for Rare Diseases
6.Policy scenarii for rare diseases
7.Rare diseases in Central/Eastern Europe
8.Services to patients, families and carers


Fellowship programme
For patient representatives from Eastern European countries who can understand English, the organisers are pleased to announce a fellowship programme that will offer:

Registration fee exemption
Travel (economy class)
Two nights accommodation
To apply to the fellowship programme download the application form and send it by email to :
secretariat@rare-diseases.eu
or by fax to + 33 1 56 53 52 15


Programme Committee
Cochairs of the programme committee:

Torben Gronnebaek Rare Disorders Denmark
Prof Josep Torrent I Farnell Fundacio Dr. Robert

Other members

Mrs Dorica Dan - Romanian Alliance of Rare Diseases Organisations
Mr Pawel Wojtowicz - Cystic Fibrosis Poland
Mr Rainald von Gizycki - Retina Europe
Mr John Dart - Debra United Kingdom
Mrs Lia van Ginneken - European Myeloma Platform
Dr Ségolène Aymé - Orphanet, RDTF
Prof Tomasz Grodzicki - Faculty of Medicine Krakow
Dr B. Dembowska-Baginska - COMP member, Poland
Dr Frits Lekkerkerker - Dutch Steering Committee on Orphan Drugs WGM
Dr Kerstin Westermark - COMP Chair, EMEA
Mr Jakub Adamski - Ministry of Health, Poland

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