NIH issues finalized policy on genomic data sharing

NIH issues finalized policy on genomic data sharing

Ethics, Policy & Law

Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 Report of the Presidential Commission for the Study of Bioethical Issues) 
Weiner C Am J Epidemiol 2014 Aug

Bioethical issues of preventing hereditary diseases with late onset in the Sakha Republic (Yakutia) 
Kononova SK, et al. Int J Circumpolar Health 2014;73

Building a data sharing model for global genomic research. 
Patricia Kosseim et al. Genome Biology, August, 2014

Informed consent for biobanking: consensus-based guidelines for adequate comprehension 
Beskow LM, et al. Genet Med 2014 Aug

Practical barriers and ethical challenges in genetic data sharing 
Simpson CL, et al. Int J Environ Res Public Health 2014;11(8):8383-98

What makes public health studies ethical? Dissolving the boundary between research and practice
Willison DJ, et al. BMC Med Ethics 2014; 15:61.

NIH issues finalized policy on genomic data sharing - Policy’s implementation is key to accelerating biomedical discoveries, NIH News, Aug 27