Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide. - PubMed - NCBI

Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide. - PubMed - NCBI

J Law Med Ethics. 2015 Sep;43(3):486-501. doi: 10.1111/jlme.12291.

Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide.

Wolf SM1, Burke W2, Koenig BA3.

Author information

Abstract

Both bioethics and law have governed human genomics by distinguishing research from clinical practice. Yet the rise of translational genomics now makes this traditional dichotomy inadequate. This paper pioneers a new approach to the ethics of translational genomics. It maps the full range of ethical approaches needed, proposes a "layered" approach to determining the ethics framework for projects combining research and clinical care, and clarifies the key role that return of results can play in advancing translation.

© 2015 American Society of Law, Medicine & Ethics, Inc.

PMID:

 

26479558

 

[PubMed - in process]