Sharing Data to Build a Medical Information Commons: From Bermuda to the Global Alliance

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Last Posted: May 25, 2017

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• Public-Private Partnerships in Cloud-Computing Services in the Context of Genomic Research.  
  Granados Moreno Palmira et al. Frontiers in medicine 2017 3
• Sharing Data to Build a Medical Information Commons: From Bermuda to the Global Alliance.  
  Cook-Deegan Robert et al. Annual review of genomics and human genetics 2017 Apr
• Biobank and Genomic Research in Uganda: Are Extant Privacy and Confidentiality Regimes Adequate?  
  Nnamuchi Obiajulu et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2016 Mar 44(1) 85-95
• The Right Not to Know and the Duty to Tell: The Case of Relatives.  
  Juth Niklas et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2014 42(1) 38-52
• Undermining Genetic Privacy? Employee Wellness Programs and the Law  
  KL Hudson et al, NEJM, May 25, 2017
• A 'joint venture' model of recontacting in clinical genomics: Challenges for responsible implementation.  
  Dheensa Sandi et al. European journal of medical genetics 2017 May
• Open sharing of genomic data: Who does it and why?  
  Haeusermann Tobias et al. PloS one 2017 12(5) e0177158
• Knowledge and attitude regarding pharmacogenetics among formerly pregnant women in the Netherlands and their interest in pharmacogenetic research.  
  Daud Aizati N A et al. BMC pregnancy and childbirth 2017 Apr 17(1) 120
• De-identified genomic data sharing: the research participant perspective.  
  Goodman Deborah et al. Journal of community genetics 2017 Apr
• Engaging a state: Facebook comments on a large population biobank.  
  Platt Tevah et al. Journal of community genetics 2017 Apr
• Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.  
  Sanderson Saskia C et al. American journal of human genetics 2017 Mar 100(3) 414-427
• Ethical Legal and Social Issues of Biobanking: Past, Present, and Future.  
  Bledsoe Marianna J et al. Biopreservation and biobanking 2017 Apr
• Is privacy the price of precision medicine?  
  By Jennifer Kulynych, OUP Blog, March 26, 2017
• Towards a Global Cancer Knowledge Network: Dissecting the current international cancer genomic sequencing landscape.  
  Vis D J et al. Annals of oncology : official journal of the European Society for Medical Oncology 2017 Feb
• Ethical Issues Surrounding Personalized Medicine: A Literature Review.  
  Salari Pooneh et al. Acta medica Iranica 2017 Mar 55(3) 209-217
• Student-Athletes' Views on APOE Genotyping for Increased Risk of Poor Recovery after a Traumatic Brain Injury.  
  Hercher Laura S et al. Journal of genetic counseling 2016 Dec 25(6) 1267-1275

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