Big advocacy, little recognition: the hidden work of Black patients in precision medicine LH Jerido et al, J Comm Genetics, October 2023

https://phgkb.cdc.gov/PHGKB/phgHome.action?query=Disparities&action=search&Mysubmit=Search From the abstract: " As cost-effective next-generation genome sequencing rapidly develops, calls for greater inclusion of Black people in genomic research, policy, and practice are necessary for effective translation of genomic science into precision population health and medicine. Employing a community-based participatory mixed methods research design, we developed a semi-structured survey that was disseminated to three cancer advocacy organizations."