RARE Revolution RARE Bite

https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=7dff7463-ab1c-41ec-978b-d13d7299390a&pnum=17 As a psychologist with a personal connection to systemic mastocytosis, Jennifer Nicoloro-SantaBarbara, a psychologist and researcher at Brigham Women’s Hospital, Boston, offers a unique perspective which fuels her active research. She is joined by Matt Bolz-Johnson, mental health lead and healthcare advisor at EURORDIS, who has also witnessed firsthand the significant toll rare diseases can take on an individual’s psychological wellbeing. Their insights shed light on the varied and sometimes surprising factors, both biological and societal, that can influence our ability to remain resilient and emotionally grounded in the face of health adversity.