Trump Administration Actions to Curb Data Collection Related to Sexual Orientation and Gender Identity (SOGI) Authors: Lindsey Dawson and Juliette Cubanski Published: Dec 11, 2025

https://www.kff.org/lgbtq/trump-administration-actions-to-curb-data-collection-related-to-sexual-orientation-and-gender-identity-sogi/?utm_campaign=KFF-This-Week&utm_medium=email&_hsenc=p2ANqtz-9FHWpIB1symZNnXiilxSTUFWHdqCYJKuPPj34vi_rtpIZPm87KnATisTjyfJEe7ksVQ1sqbUA9YVJ3I2Zt1pNjyIG9SQ&_hsmi=394181359&utm_content=394181359&utm_source=hs_email On January 20, 2025, the first day of his second term, President Trump issued an executive order on “gender ideology” outlining how his administration would view sex and gender and incorporate these concepts into government. This executive order has had widespread implications across government and for federal grantees. One area that has been impacted is the federal government’s data collection efforts. This includes changes to questions about sexual orientation and gender identity (SOGI) in multiple federal surveys, and retreating from plans to incorporate SOGI questions in surveys of the U.S. population by the Census Bureau. While data collection on both sexual orientation and gender has been scaled back or modified, measures relating to gender identity have been more specifically targeted for deletion. Trump Rules Force Cancer Registries To ‘Erase’ Trans Patients From Public Health Data By Rachana Pradhan December 11, 2025 https://kffhealthnews.org/news/article/listen-wamu-health-hub-cancer-registries-sex-assigned-at-birth-transgender-data-rule/?utm_campaign=KFF-This-Week&utm_medium=email&_hsenc=p2ANqtz-8p8Df5DNBFGOYc0-llwnJz8dVMIl1PYNm2NX03emRO6Q4Eb8Z92Nbt5U93N32YoJuNflMhvV-DWQjgrsfVzeZ9IBK7Ng&_hsmi=394181359&utm_content=394181359&utm_source=hs_email In 2026, the Trump administration will require U.S. cancer registries that receive federal funding to classify patients’ sex as male, female — or not stated/unknown. That last category is for when a “patient’s sex is documented as other than male or female (e.g., non-binary, transsexual), and there is no additional information about sex assigned at birth,” the new standard says. This HIV Expert Refused To Censor Data, Then Quit the CDC By Amy Maxmen December 10, 2025 https://kffhealthnews.org/news/article/hiv-expert-john-weiser-refused-to-censor-data-quit-cdc-transgender-interview/?utm_campaign=KFF-This-Week&utm_medium=email&_hsenc=p2ANqtz--HE0KEr4e8t8LqdxQNr2dg7mUr_wzSFgMmmOCas9_CY2mCOiIkg3B6AUHIW7cMjM6sW_A-Hc9Bpgc4Unvq6QMRT6bi8w&_hsmi=394181359&utm_content=394181359&utm_source=hs_email John Weiser, a doctor and researcher, has treated people with HIV since the beginning of the AIDS epidemic in the 1980s. He joined the CDC’s HIV prevention team in 2011 to help lead its Medical Monitoring Project, the only in-depth survey of HIV across the United States. The project has shaped the country’s response to the epidemic over two decades, but the Trump administration censored last year’s findings and stopped funding it.