Data use under the NIH GWAS Data Sharing Policy and future directions : Nature Genetics : Nature Publishing Group

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Data use under the NIH GWAS Data Sharing Policy and future directions : Nature Genetics : Nature Publishing Group

Genomic Data Sharing: Accelerating Discovery & Translation

NIH issues finalized policy on genomic data sharing. Policy’s implementation is key to accelerating biomedical discoveries, NIH News, Aug 27

Data use under the NIH GWAS data sharing policy and future directions
Dina N Paltoo, et al. Nature, August 27, 2014

NIH data sharing policies

NIH issues genomic data sharing policy 

A global alliance for sharing genomic and clinical data (2014)

Unpublished genomic data–how to share?
Shreeya Nanda and Maria K Kowalczuk BMC Genomics (2014)

A special series on genomics data sharing in Genome Medicine

A human rights approach to an international code of conduct for genomic and clinical data sharing
Knoppers B,et al. Hum Genet 2014 Feb 16

Data use under the NIH GWAS Data Sharing Policy and future directions

• Dina N Paltoo,
• Laura Lyman Rodriguez,
• Michael Feolo,
• Elizabeth Gillanders,
• Erin M Ramos,
• Joni L Rutter,
• Stephen Sherry,
• Vivian Ota Wang,
• Alice Bailey,
• Rebecca Baker,
• Mark Caulder,
• Emily L Harris,
• Kristofor Langlais,
• Hilary Leeds,
• Erin Luetkemeier,
• Taunton Paine,
• Tamar Roomian,
• Kimberly Tryka,
• Amy Patterson
• & Eric D Green
• for the National Institutes of Health Genomic Data Sharing Governance Committees

• Affiliations
• Contributions
• Corresponding author

Nature Genetics

 

46,

 

934–938

 

(2014)

 

doi:10.1038/ng.3062

Published online

 

27 August 2014

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Abstract

• Abstract• 
• References• 
• Acknowledgments• 
• Author information• 
• Supplementary information

In 2007, the US National Institutes of Health (NIH) introduced the Genome-Wide Association Studies (GWAS) Policy and the database of Genotypes and Phenotypes (dbGaP) to facilitate 'controlled' access to GWAS data based on participants' informed consent. dbGaP has provided 2,221 investigators access to 304 studies, resulting in 924 publications and significant scientific advances. Following on this success, the 2014 Genomic Data Sharing Policy will extend the GWAS Policy to additional data types.