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Agency for Toxic Substances and Disease Registry releases first set of data from National ALS Registry
About 4 in 100,000 people live with Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease in the United States, according to the first data summary released today by the Agency for Toxic Substances and Disease Registry.
The report in today’s Morbidity and Mortality Weekly Report (MMWR) displays data from the National ALS Registry. This is the only known data that identifies all ALS cases among people living in the United States. Data in the Registry come from two sources: national administrative databases and self-reports from people living with ALS.