Genomics in the Scientific Literature [26] - Ethical, Legal, and Social Issues (ELSI)

Genomics in the Scientific Literature
Topics in the Scientific Literature

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Ethical, Legal, and Social Issues (ELSI)
1. Personal genome research : what should the participant be told?
McGuire AL & Lupski JR
Trends Genet 2010 Apr

Trends Genet. 2010 Apr 8. [Epub ahead of print]

Personal genome research : what should the participant be told?
McGuire AL, Lupski JR.

Center for Medical Ethics and Health Policy, Baylor College of Medicine, One Baylor Plaza, BCM420 Houston, Texas 77030, USA.

Abstract
Should the results of whole genome sequencing research be disclosed to participants, in particular when the results have uncertain or indeterminate phenotypic consequences? This controversial question is considered in light of one author's (J.L.) experience as a geneticist who recently had his own genome sequenced. Copyright © 2010 Elsevier Ltd. All rights reserved.

PMID: 20381895 [PubMed - as supplied by publisher]
http://www.ncbi.nlm.nih.gov/pubmed/20381895?dopt=Abstract