miércoles, 11 de diciembre de 2024

For an EU commitment to tackling rare diseases

https://www.eesc.europa.eu/en/agenda/our-events/events/eu-commitment-tackling-rare-diseases EESC conference A European Economic and Social Committee (EESC) conference in Budapest, Hungary, on 29 November saw the widespread reaffirmation of calls for a European Action Plan on Rare Diseases. Speaking at the event, our Chief Executive Officer Virginie Bros-Facer reiterated that “no single country can fully address the complex challenges rare disease patients face,” underscoring the need for EU-wide collaboration. EU conference prepares for comprehensive European action on rare diseases https://www.eurordis.org/eurordis-welcomes-budapest-eesc-conference/

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