viernes, 20 de febrero de 2026

Rare Disease Month Developments – Part 3: The Ugly (just kidding) – See You at Rare Disease Week February 20, 2026 By Sarah Wicks & Mark A. Tobolowsky —

https://www.thefdalawblog.com/2026/02/rare-disease-month-developments-part-3-the-ugly-just-kidding-see-you-at-rare-disease-week/?utm_source=rss&utm_medium=rss&utm_campaign=rare-disease-month-developments-part-3-the-ugly-just-kidding-see-you-at-rare-disease-week If Part 1 of our Rare Disease Month series highlighted The Good, and Part 2 addressed The Bad, Part 3 turns to The Ugly. And by “Ugly,’ we mean something entirely different – members of Hyman, Phelps & McNamara will be well represented at Rare Disease Week (RDW) on Capitol Hill next week, convened for the 15th consecutive year by the EveryLifeFoundation for Rare Diseases.

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