Legal and Ethical Framework to Use Centers for Disease Control and Prevention Data for Patient-Centered Outcomes Research |
| Patient-centered outcomes research (PCOR) is a type of comparative effectiveness research (CER) that prioritizes consideration of outcomes important to individual patients: risks and potential benefits of treatment, quality of life, the range of treatment options, etc. However, allowing CDC’s data to be used for PCOR introduces some specific legal and ethical challenges. This paper offers a framework to navigate those challenges. It organizes the tools CDC needs to make decisions about how its data can best serve the public and advance the agency’s mission to support safer, healthier people. |
Legal and Ethical Framework to Use Centers for Disease Control and Prevention Data for Patient-Centered Outcomes Research.[PDF – 109KB]Patient-centered outcomes research (PCOR) is a type of comparative effectiveness research (CER) that prioritizes consideration of outcomes important to individual patients: risks and potential benefits of treatment, quality of life, the range of treatment options, etc. However, allowing CDC’s data to be used for PCOR introduces some specific legal and ethical challenges. This paper offers a framework to navigate those challenges. It organizes the tools CDC needs to make decisions about how its data can best serve the public and advance the agency’s mission to support safer, healthier people.
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