domingo, 7 de octubre de 2018

Informed consent AND (genetic OR genomic) AND review - PubMed - NCBI

Informed consent AND (genetic OR genomic) AND review - PubMed - NCBI

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From PubMed

PubMed comprises more than 27 million citations for biomedical literature from MEDLINE, life science journals, and online books. Citations may include links to full-text content from PubMed Central and publisher web sites.




1.
Informed consent for human genetic and genomic studies: a systematic review.
Khan A, Capps BJ, Sum MY, Kuswanto CN, Sim K.
Clin Genet. 2014 Sep;86(3):199-206. doi: 10.1111/cge.12384. Epub 2014 Apr 18. Review.

PMID:
 
24646408
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2.
[Informed consent and ethical review].
Morisaki T.
Nihon Rinsho. 2010 Aug;68 Suppl 8:317-21. Japanese. No abstract available.

PMID:
 
20979287
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3.
Evolving approaches to the ethical management of genomic data.
McEwen JE, Boyer JT, Sun KY.
Trends Genet. 2013 Jun;29(6):375-82. doi: 10.1016/j.tig.2013.02.001. Epub 2013 Feb 28. Review.

PMID:
 
23453621
 
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4.
Ethical issues raised by whole genome sequencing.
Pinxten W, Howard HC.
Best Pract Res Clin Gastroenterol. 2014 Apr;28(2):269-79. doi: 10.1016/j.bpg.2014.02.004. Epub 2014 Mar 12. Review.

PMID:
 
24810188
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5.
Managing the ethical challenges of next-generation sequencing in genomic medicine.
Clarke AJ.
Br Med Bull. 2014 Sep;111(1):17-30. doi: 10.1093/bmb/ldu017. Epub 2014 Aug 13. Review.

PMID:
 
25122627
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6.
To share or not to share: a randomized trial of consent for data sharing in genome research.
McGuire AL, Oliver JM, Slashinski MJ, Graves JL, Wang T, Kelly PA, Fisher W, Lau CC, Goss J, Okcu M, Treadwell-Deering D, Goldman AM, Noebels JL, Hilsenbeck SG.
Genet Med. 2011 Nov;13(11):948-55. doi: 10.1097/GIM.0b013e3182227589.

PMID:
 
21785360
 
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7.
Genetic counselors: your partners in clinical practice.
Mester JL, Schreiber AH, Moran RT.
Cleve Clin J Med. 2012 Aug;79(8):560-8. doi: 10.3949/ccjm.79a.11091. Review.

PMID:
 
22854435
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8.
Individual genetic and genomic research results and the tradition of informed consent: exploring US review board guidance.
Simon C, Shinkunas LA, Brandt D, Williams JK.
J Med Ethics. 2012 Jul;38(7):417-22. doi: 10.1136/medethics-2011-100273. Epub 2012 Mar 5.

PMID:
 
22361295
 
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9.
[Medical genetics and the genome].
Gerdes AM, Vogel I.
Ugeskr Laeger. 2014 Nov 10;176(46). pii: V06140361. Review. Danish.

PMID:
 
25394930
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10.
Is informed consent broken?
Henderson GE.
Am J Med Sci. 2011 Oct;342(4):267-72. doi: 10.1097/MAJ.0b013e31822a6c47. Review.

PMID:
 
21817873
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11.
[Technical evaluation of medical practice--conversion from things to skill and art. Topics: V. Toward establishment of technical evaluation on medical practice: 4. Informed consent under unusual conditions, 2) Genetic counseling and evaluation of medical treatment fee].
Fukushima Y, Takada F.
Nihon Naika Gakkai Zasshi. 2014 Dec 10;103(12):2962-7. Review. Japanese. No abstract available.

PMID:
 
25812312
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12.
The tension between data sharing and the protection of privacy in genomics research.
Kaye J.
Annu Rev Genomics Hum Genet. 2012;13:415-31. doi: 10.1146/annurev-genom-082410-101454. Epub 2012 Mar 9. Review.

PMID:
 
22404490
 
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13.
Patients would benefit from simplified ethical review and consent procedure.
Hansson MG, van Ommen GJ, Chadwick R, Dillner J.
Lancet Oncol. 2013 May;14(6):451-3. doi: 10.1016/S1470-2045(13)70129-3. Epub 2013 Mar 21. No abstract available.

PMID:
 
23522924
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14.
Next-generation sequencing applied to rare diseases genomics.
Danielsson K, Mun LJ, Lordemann A, Mao J, Lin CH.
Expert Rev Mol Diagn. 2014 May;14(4):469-87. doi: 10.1586/14737159.2014.904749. Epub 2014 Apr 4. Review.

PMID:
 
24702023
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15.
Next generation sequencing in psychiatric research: what study participants need to know about research findings.
Mathieu G, Groisman IJ, Godard B.
Int J Neuropsychopharmacol. 2013 Oct;16(9):2119-27. doi: 10.1017/S1461145713000527. Epub 2013 Jun 3. Review.

PMID:
 
23725748
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16.
Using electronic health records to drive discovery in disease genomics.
Kohane IS.
Nat Rev Genet. 2011 Jun;12(6):417-28. doi: 10.1038/nrg2999. Epub 2011 May 18. Review.

PMID:
 
21587298
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17.
The documentation of consent and disclosure of neurogenetic testing outside clinical genetics.
Lo C, Martindale J, Hadjivassiliou M, Martin P, Dalton A, Bandmann O.
Neurogenetics. 2014 Mar;15(1):19-21. doi: 10.1007/s10048-014-0391-3. Epub 2014 Feb 11.

PMID:
 
24515844
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18.
Informed consent in genomics and genetic research.
McGuire AL, Beskow LM.
Annu Rev Genomics Hum Genet. 2010;11:361-81. doi: 10.1146/annurev-genom-082509-141711. Review.

PMID:
 
20477535
 
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19.
What is a cure and how do we get there?
Skinner MW, Lillicrap DP, McMillan J, Castro Ozelo M, Pierce GF.
Haemophilia. 2004 Oct;10 Suppl 4:115-8. Review.

PMID:
 
15479383
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20.
Sampling populations of humans across the world: ELSI issues.
Knoppers BM, Zawati MH, Kirby ES.
Annu Rev Genomics Hum Genet. 2012;13:395-413. doi: 10.1146/annurev-genom-090711-163834. Epub 2012 Mar 8. Review.

PMID:
 
22404491
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