10 Minutes With Rhiannon Walls

https://www.eurordis.org/10-minutes-with/ 10 Minutes With... In this month’s episode of 10 Minutes With, host Rhiannon Walls speaks with Zhana Chokheli, a rare disease advocate from Georgia, to explore the power of patient-driven change. Zhana shares her personal journey of raising a son with an SCN2A-related condition and how that experience led her to co-found the Georgian Alliance for Rare Diseases. She highlights the urgent need for diagnosis, awareness, and support structures in underrepresented regions. Watch now to discover how one parent’s voice is shaping rare disease advocacy!