When Fragmented Care Becomes the Whole Patient’s Kryptonite Manuela Callari

https://www.medscape.com/viewarticle/when-fragmented-care-becomes-whole-patients-kryptonite-2026a1000n6l As a child, Andoulsi was clumsy and uncoordinated; the one whose joints seemed to move in ways they shouldn’t. Often fatigued, she struggled to keep up with her peers and was told she was lazy. Because her symptoms were multisystemic and vague — from digestive issues to dull joint pain — doctors failed to connect the dots. The 31-year-old dancer and artist in Paris, France, received an Ehlers-Danlos syndrome (EDS) diagnosis at age 24 after countless doctor visits. Throughout her life, gaps in care have at times brought her close to death.