To Enhance Rare Disease Patient Engagement, The Food And Drug Administration Must Reckon With Industry Influence Matthew S. McCoyandMeghan C. Halley August 17, 2026

https://www.healthaffairs.org/content/forefront/enhance-rare-disease-patient-engagement-food-and-drug-administration-must-reckon The agency has failed to consider ways in which industry influence can shape the patient voices that the FDA hears.