We tend to give utilitarianism a hard time in “Pointed Remarks”. But sometimes we could do with a bit more utilitarianism. It might keep the media – and many doctors, too – from being so dewy-eyed about apparent successes. Take IVF, which celebrated, so to speak, its 40th anniversary this week, with the birthday of Louise Brown.
In some respects, IVF has been quite a success. An estimated 8 million IVF children have been born since then. A thriving industry has grown up, worth some US$15 billion, making lots of doctors, scientists, technicians and administrators very wealthy. That is the happiness side of the ledger.
But how about the women who endured cycle after cycle of IVF without conceiving? Their lives have been filled with suffering as a result. And there are far more of them than women who eventually conceived. How about the destruction of millions upon millions of human embryos? And how about the disturbing future of IVF – designer babies and genetically-engineered children? That is the pain side of the ledger. It hasn’t been quantified, of course, but it must be acknowledged. I would venture to say that the balance is negative.
Whether I’m right or wrong about that, I do think that we need a clearer vision of the negative side of assisted reproductive technology.
In some respects, IVF has been quite a success. An estimated 8 million IVF children have been born since then. A thriving industry has grown up, worth some US$15 billion, making lots of doctors, scientists, technicians and administrators very wealthy. That is the happiness side of the ledger.
But how about the women who endured cycle after cycle of IVF without conceiving? Their lives have been filled with suffering as a result. And there are far more of them than women who eventually conceived. How about the destruction of millions upon millions of human embryos? And how about the disturbing future of IVF – designer babies and genetically-engineered children? That is the pain side of the ledger. It hasn’t been quantified, of course, but it must be acknowledged. I would venture to say that the balance is negative.
Whether I’m right or wrong about that, I do think that we need a clearer vision of the negative side of assisted reproductive technology.
 Michael Cook Editor BioEdge |  |  |  |
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Predatory journals masquerade as legitimate, mainstream journalsThree children euthanised in Belgium
by Michael Cook | 27 Jul 2018 |
Three minors have been euthanised in Belgium since euthanasia for children was legalised in 2014. According to the latest report from the government agency(PDF in French) which tracks euthanasia deaths, the children were 9, 11 and 17 years old. Two died in 2016 and 1 last year.
Under the existing law, their request for death has to be voluntary and well-considered and the patient must be suffering unbearably, with no prospect of improvement.
"There is no age for suffering," said Professor Wim Distelmans, chairman of the Federal Commission for Euthanasia Control and Evaluation. "Fortunately, euthanasia among young people remains very exceptional. Even if it were only one, the law would have been very useful. "
The number of euthanasia cases seems to be rising rapidly in Belgium, particularly in Flanders, the Dutch-speaking region. In 2007, 495 Belgians chose euthanasia; in 2016 the number was 2,028 and in 2017 2,309. Four out of five are Dutch-speaking.
From the UK, Lord Alex Carlile, co-chairman of Living and Dying Well, a parliamentary group opposed to euthanasia, declared that he was “profoundly shocked” by the report.
“The euthanasia of those children is plainly contradictory of the European Convention on Human Rights. No parent and no public authority has the power to take away the life of anyone who is a child, whoever they are. The Belgium government is far too relaxed about this. It is not ensuring that appropriate checks are carried out and standards maintained. Belgium is perhaps the state that is causing the greatest concern in Europe about the way it administers euthanasia.”
Another controversial issue which surfaces in this year’s report is “polypathology” – a combination of illnesses which together makes life unendurable. Although cancer remains the principal reason for requesting euthanasia, the number of polypathology cases has risen from polypathology patients requesting euthanasia have almost doubled in the last four years from 232 to 444.
According to a discussion of child euthanasia in Belgium in the July issue of the Medical Law Review journal, “euthanasia accounts for 1.7% to 1.8% of all deaths in Belgium, although anonymous physician surveys suggest that the actual figure, at least in Flanders, the Dutch-speaking Northern half of Belgium, is closer to 4.6%.”
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