Last Posted: Oct 15, 2018
- The UK Biobank resource with deep phenotyping and genomic data.
Bycroft Clare et al. Nature 2018 Oct (7726) 203-209 - UK Biobank shares the promise of big data
N Cox, Nature News, October 10, 2018 - Recall by genotype and cascade screening for familial hypercholesterolemia in a population-based biobank from Estonia.
Alver Maris et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Oct - A Stepwise Procedure to Define a Data Collection Framework for a Clinical Biobank.
Manders Peggy et al. Biopreservation and biobanking 2018 Apr 16(2) 138-147 - Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey.
Antommaria Armand H Matheny et al. AJOB empirical bioethics 2018 Sep 1-15 - A comparison of genome cohort participants' genetic knowledge and preferences to receive genetic results before and after a genetics workshop.
Yamamoto Kayono et al. Journal of human genetics 2018 Sep - Balancing the local and the universal in maintaining ethical access to a genomics biobank.
Heeney Catherine et al. BMC medical ethics 2017 18(1) 80 - How 500,000 Britons are critical to assessing global disease risk UK Biobank volunteers help develop genetic tests for common disorders worldwide
C Elwell, August 22, 2018 - The ethics conundrum in Recall by Genotype (RbG) research: Perspectives from birth cohort participants.
Minion Joel T et al. PloS one 2018 13(8) e0202502 - Biobanks and the Moral Concerns of Donors: A Democratic Deliberation.
De Vries Raymond G et al. Qualitative health research 2018 Aug 1049732318791826
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