Variant data sharing by clinical laboratories through public databases: consent, privacy and further contact for research policies.

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Last Posted: Oct 11, 2018

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• Variant data sharing by clinical laboratories through public databases: consent, privacy and further contact for research policies.
  Shabani Mahsa et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Oct
• Sharing data for future research-engaging participants' views about data governance beyond the original project: a DIRECT Study.
  Shah Nisha et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Sep
• Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey.
  Antommaria Armand H Matheny et al. AJOB empirical bioethics 2018 Sep 1-15
• SMART Cancer Navigator: A Framework for Implementing ASCO Workshop Recommendations to Enable Precision Cancer Medicine.
  Warner Jeremy L et al. JCO precision oncology 2018 2018
• Conclusion: harmonisation in genomic and health data sharing for research: an impossible dream?
  Townend David et al. Human genetics 2018 Aug 137(8) 657-664
• South Korea: in the midst of a privacy reform centered on data sharing.
  Kim Hannah et al. Human genetics 2018 Aug 137(8) 627-635
• Balancing the local and the universal in maintaining ethical access to a genomics biobank.
  Heeney Catherine et al. BMC medical ethics 2017 18(1) 80
• Genomic data sharing: the Australian context.
  Eckstein Lisa et al. Human genetics 2018 Aug
• Precision medicine and sharing medical data in real time: opportunities and barriers.
  Yang Y Tony et al. The American journal of managed care 2018 Aug 24(8) 356-358
• SpainUDP: The Spanish Undiagnosed Rare Diseases Program.
  López-Martín Estrella et al. International journal of environmental research and public health 2018 Aug 15(8)

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