Opportunity to Comment on Draft Report

While patient registries may be designed to meet a specific clinical research question, attention within the United States in recent years has focused on developing registries that can serve as central components of a learning health system and national health data infrastructure. Within a learning health system, registries can support population health management, clinical decision-making, quality improvement, and clinical research. However, registries must be connected to other registries, EHRs, and other data sources in order to meet these goals within a learning health system. The purpose of this e-book is to discuss practical issues in connecting registries to other data systems, including EHRs.

We encourage the public to participate in the development of our research projects. Comments can be submitted for:

Tools and Technologies for Registry Interoperability: Addendum to the Third Edition of Registries for Evaluating Patient Outcomes: A User’s Guide
Available for comment until February 8, 2019

Opportunity to Submit Scientific Information

The Effective Health Care (EHC) Program is interested in receiving supplemental evidence and data (SEADs) for systematic reviews that are relevant to the questions in our evidence reports. To ensure that it has full access to relevant research, whether or not it is published, the EHC Program is interested in receiving SEADs containing detailed study-specific information. Opportunities to submit scientific information are available for:

Maternal and Fetal Effects of Mental Health Treatments in Pregnant and Breastfeeding Women: A Systematic Review of Pharmacological Interventions
Available for submissions until February 7, 2019

About us: AHRQ’s Effective Health Care Program is committed to providing the best available evidence on the outcomes, benefits and harms, and appropriateness of drugs, devices, and health care services and by helping health care professionals, patients, policymakers, and health care systems make informed health care decisions. The program partners with research centers, academic institutions, health professional societies, consumer organizations, and other stakeholders to conduct research, evidence synthesis, evidence translation, dissemination, and implementation of research findings.

To learn more: https://www.effectivehealthcare.ahrq.gov