Data Sharing for the Public Good. Helzlsouer Kathy J et al. Journal of the National Cancer Institute 2020 Jan

Hot Topics of the Day|PHGKB




Last Posted: May 10, 2020

---

• Data Sharing for the Public Good.
  Helzlsouer Kathy J et al. Journal of the National Cancer Institute 2020 Jan
• Use of Real-World Evidence in US Payer Coverage Decision-Making for Next-Generation Sequencing–Based Tests: Challenges, Opportunities, and Potential Solutions
  P Deverka et al, Value in Health, May 2020
• Key Expert Stakeholder Perceptions of the Law of Genomics: Identified Problems and Potential Solutions.
  Cheung Fook Yee et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2020 Mar 48(1) 87-104
• Biomedical Research Cohort Membership Disclosure on Social Media.
  Liu Yongtai et al. AMIA ... Annual Symposium proceedings. AMIA Symposium 2019 2019607-616
• Ethical and practical issues to consider in the governance of genomic and human research data and data sharing in South Africa: a meeting report.
  Staunton Ciara et al. AAS open research 2019 May 215
• Biobanking for Genomic and Personalized Health Research: Participant Perceptions and Preferences.
  Barnes Rebecca et al. Biopreservation and biobanking 2020 Apr
• Contemporary Insights Into the Genetics of Hypertrophic Cardiomyopathy: Toward a New Era in Clinical Testing?
  Mazzarotto Francesco et al. Journal of the American Heart Association 2020 Apr 9(8) e015473
• What motivates the sharing of consumer-generated genomic information?
  Hendricks-Sturrup Rachele M et al. SAGE open medicine 2020 82050312120915400
• Aggregating multiple real-world data sources using a patient-centered health-data-sharing platform
  SS Dhruva et al NPJ Digital Medicine, April 20, 2020
• Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
  M Hudson et al, Nat Rev Genetics, April 7, 2020

more