Using Stakeholder Engagement to Develop a Hospital-Initiated, Patient-Centered Intervention to Improve Hospital-to-Home Transitions for Children With Asthma

Kavita Parikh 1, Pamela S Hinds 2, Stephen J Teach 2

Affiliations

PMID: 31068373
DOI: 10.1542/hpeds.2018-0261

Abstract

Stakeholder engagement is emerging as a tool for clinician investigators to learn from patients, families, and health professionals to better design and implement interventions that are responsive to patient and family needs and preferences. In this article, we demonstrate that multidisciplinary stakeholder engagement can meaningfully influence intervention design. We present a model of efficient yet substantive engagement of parents and health professionals in developing a hospital-to-home transition intervention for children hospitalized with asthma. We engaged parents during the acute hospitalization with one-on-one interviews, and we used one-on-one interviews and focus groups to engage key health professionals to facilitate meaningful engagement. We worked with a group of selected parent advisory council members (composed of parents of children with asthma) to refine the information gained from the parents and health professionals. We found that multidimensional stakeholder engagement can meaningfully shape intervention development, and we hope that these tools can be used or adapted to other hospital-based quality improvement, education, or research efforts.