Data sharing [NEW TOPIC PAGE]

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Last Posted: Jun 09, 2020

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• Reliability of Supervised Machine Learning Using Synthetic Data in Healthcare: A Model to Preserve Privacy for Data Sharing.
  Rankin Debbie et al. JMIR medical informatics 2020 Jun
• The Project Baseline Health Study: a step towards a broader mission to map human health
  K Arges et al, NPJ Digital Medicine, June 5, 2020
• Public Attitudes Toward Precision Medicine: A Nationwide Survey on Developing a National Cohort Program for Citizen Participation in the Republic of Korea.
  Kim Hannah et al. Frontiers in genetics 2020 11283
• Promoting best practice in nucleotide sequence data sharing.
  et al. Scientific data 2020 May (1) 152
• A Scenario-Based Methodology for Analyzing the Ethical, Legal, and Social Issues in Genomic Data Sharing.
  McWhirter Rebekah et al. Journal of empirical research on human research ethics : JERHRE 2020 May 1556264620920460
• Genetic Privacy and Data Protection: A Review of Chinese Direct-to-Consumer Genetic Test Services.
  Du Li et al. Frontiers in genetics 2020 11416
• Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review.
  Jones Kerina et al. Journal of medical Internet research 2020 May 22(5) e16346
• Using big data in pediatric oncology: Current applications and future directions.
  Major Ajay et al. Seminars in oncology 2020 47(1) 56-64
• Use of Real-World Evidence in US Payer Coverage Decision-Making for Next-Generation Sequencing-Based Tests: Challenges, Opportunities, and Potential Solutions.
  Deverka Patricia A et al. Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research 2020 May 23(5) 540-550
• Data Sharing for the Public Good.
  Helzlsouer Kathy J et al. Journal of the National Cancer Institute 2020 Jan

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