Last Posted: May 28, 2020
- A Scenario-Based Methodology for Analyzing the Ethical, Legal, and Social Issues in Genomic Data Sharing.
McWhirter Rebekah et al. Journal of empirical research on human research ethics : JERHRE 2020 May 1556264620920460 - Genetic Privacy and Data Protection: A Review of Chinese Direct-to-Consumer Genetic Test Services.
Du Li et al. Frontiers in genetics 2020 11416 - Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review.
Jones Kerina et al. Journal of medical Internet research 2020 May 22(5) e16346 - Using big data in pediatric oncology: Current applications and future directions.
Major Ajay et al. Seminars in oncology 2020 47(1) 56-64 - Use of Real-World Evidence in US Payer Coverage Decision-Making for Next-Generation Sequencing-Based Tests: Challenges, Opportunities, and Potential Solutions.
Deverka Patricia A et al. Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research 2020 May 23(5) 540-550 - Data Sharing for the Public Good.
Helzlsouer Kathy J et al. Journal of the National Cancer Institute 2020 Jan - Use of Real-World Evidence in US Payer Coverage Decision-Making for Next-Generation Sequencing–Based Tests: Challenges, Opportunities, and Potential Solutions
P Deverka et al, Value in Health, May 2020 - Key Expert Stakeholder Perceptions of the Law of Genomics: Identified Problems and Potential Solutions.
Cheung Fook Yee et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2020 Mar 48(1) 87-104 - Biomedical Research Cohort Membership Disclosure on Social Media.
Liu Yongtai et al. AMIA ... Annual Symposium proceedings. AMIA Symposium 2019 2019607-616 - Ethical and practical issues to consider in the governance of genomic and human research data and data sharing in South Africa: a meeting report.
Staunton Ciara et al. AAS open research 2019 May 215
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