Public Education Resources | Genetic Conditions
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Educational Materials for the Public
Welcome to the Oregon Genetics Program's Educational materials Page, which includes resources and links for consumers on genetics, genomics, and family history.
Genetic Research (1856 - 2012)
Please enjoy this short video describing genetic research, from Mendel to the ENCODE Project. Nature Video Channel produced this video with exclusive support from Illumina®. Watch video
Oregon Genetics Program Factsheets
Breast Cancer and Family History
National Resources
- CDC National Office of Public Health Genomics
www.cdc.gov/genomics
This site provides visitors with information about human genetic discoveries and how they can be used to improve health and prevent disease. This site also includes links to genomics programs in other states.
- CDC National Center for Birth Defects and Developmental Disabilities
www.cdc.gov/ncbddd
This site provides visitors with information about birth defects prevention, surveillance and research. It includes information about the national Early Hearing Detection and Intervention initiative.
- GeneReviews
http://www.genereviews.org/
This site provides comprehensive information about genetic conditions, national and international genetic clinics, and genetic testing laboratories.
- Genetic Alliance
http://www.geneticalliance.org/
Site links to support groups for genetic conditions and other information about specific genetic conditions.
- Genetics and Public Policy Centerhttp://www.dnapolicy.org/
Site links to Center which works to help policy leaders, decision makers, and the public better understand the rapidly evolving field of human genetics and its application to healthcare.
- National Human Genome Research Institute
www.genome.gov
This site provides a wealth of information about research, clinical care, and education related to the Human Genome Project, including information on ethical, legal, and social issues.
- National Newborn Screening and Genetics Resource Centerhttp://genes-r-us.uthscsa.edu/
This site provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.
- National Organization for Rare Disordershttp://www.rarediseases.org/
Many genetic diseases are rare. The National Organization for Rare Disorders is dedicated in helping people with rare "orphan" diseases and assisting organizations that serve them.
- U.S. Health Resources and Services Administration/Maternal and Child Health Bureau Genetic Services Branchwww.mchb.hrsa.gov/programs
This site provides information about federal initiatives to improve maternal and child health services and outcomes, including genetics-related services and outcomes.
Western Regional Resources
- Child Development and Rehabilitation Center (CDRC) at Oregon Health & Science University
http://cdrc.ohsu.edu
(includes Oregon's Children with Special Health Needs Program)
This site links to the Oregon Genetics Program co-sponsor, CDRC. The site includes information and resources for children and families impacted by special health needs, including those with inherited conditions and birth defects.
- GeneForumwww.geneforum.org
This site is devoted to informing the public about current and emerging genetic policy issues, fostering public dialogue, and promoting public participation in genetic policy development.
- Western States Genetics Services Collaborative http://www.westernstatesgenetics.org/
This site offers information regarding the collaboration among Alaska, California, Guam, Hawaii, Idaho, Oregon, and Washington on a federally funded multi-state project that seeks to coordinate and increase access to genetic services.
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