Ethical, Legal, and Social Issues (ELSI) of Responsible Data Sharing Involving Children in Genomics: A Systematic Literature Review of Reasons. Rahimzadeh Vasiliki et al. AJOB empirical bioethics 2020 Sep 1-13

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Last Posted: Oct 01, 2020

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• Ethical, Legal, and Social Issues (ELSI) of Responsible Data Sharing Involving Children in Genomics: A Systematic Literature Review of Reasons.
  Rahimzadeh Vasiliki et al. AJOB empirical bioethics 2020 Sep 1-13
• A Scenario-Based Methodology for Analyzing the Ethical, Legal, and Social Issues in Genomic Data Sharing.
  McWhirter Rebekah et al. Journal of empirical research on human research ethics : JERHRE 2020 May 1556264620920460
• Ubuntu philosophy and the consensus regarding incidental findings in genomic research: a heuristic approach.
  Ewuoso Cornelius et al. Medicine, health care, and philosophy 2020 Apr
• Genetics and ESKD Disparities in African Americans.
  Umeukeje Ebele M et al. American journal of kidney diseases : the official journal of the National Kidney Foundation 2019 74(6) 811-821
• "Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record.
  Andrews Sara M et al. Journal of the American Medical Informatics Association : JAMIA 2020 Jan
• A Genomically Informed Education System? Challenges for Behavioral Genetics.
  Sabatello Maya et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2018 46(1) 130-144
• Unsolved challenges in pediatric whole-exome sequencing: A literature analysis.
  Bertier Gabrielle et al. Critical reviews in clinical laboratory sciences 2017 54(2) 134-142
• Managing "incidental findings" in biobank research: Recommendations of the Taiwan biobank.
  Lin Jui-Chu et al. Computational and structural biotechnology journal 2019 171135-1142
• Epigenetics, ethics, law and society: A multidisciplinary review of descriptive, instrumental, dialectical and reflexive analyses.
  Dupras Charles et al. Social studies of science 2019 Aug 306312719866007
• Is it Time to Integrate Polygenic Risk Scores into Clinical Practice? Let's Do the Science First and Follow the Evidence Wherever it Takes Us!
  MJ Khoury et al, CDC blog post

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