jueves, 26 de julio de 2018

EHC Update: Registry of Patient Registries Draft Reports Available for Comment

EHC Update: Registry of Patient Registries Draft Reports Available for Comment

effective health care program - helping you make better treatment choices



Opportunity to Comment on Draft Reports

Significant variation exists in both the types and definitions of outcome measures used in patient registries, even within the same clinical area. This variation makes it difficult to compare, link, and aggregate data across clinical care and reporting. To address this variation, AHRQ developed the Outcome Measures Framework (OMF), a conceptual model for classifying outcomes that are relevant to patients and providers across most conditions.
AHRQ assessed the feasibility of using the OMF to develop standardized libraries of outcome measures in five condition areas. We encourage the public to participate in the development of our research projects. Comments can be submitted for:  
Library of Common Data Definitions: Lung Cancer
Available for comment until August 16, 2018 
Library of Common Data Definitions: Lumbar Spondylolisthesis 
Available for comment until August 21, 2018 
Data Elements Development, Governance, and Harmonization
Available for comment until August 21, 2018

About us: AHRQ’s Effective Health Care Program is committed to providing the best available evidence on the outcomes, benefits and harms, and appropriateness of drugs, devices, and health care services and by helping health care professionals, patients, policymakers, and health care systems make informed health care decisions. The program partners with research centers, academic institutions, health professional societies, consumer organizations, and other stakeholders to conduct research, evidence synthesis, evidence translation, dissemination, and implementation of research findings.
Contact us at: epc@ahrq.hhs.gov

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