Protecting Participants, Empowering Researchers: Providing Access to Genomic Summary Results

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Last Posted: Nov 01, 2018

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• A systematic literature review of individuals' perspectives on privacy and genetic information in the United States.
  Clayton Ellen W et al. PloS one 2018 (10) e0204417
• Protecting Participants, Empowering Researchers: Providing Access to Genomic Summary Results
  ED Green et al, NHGRI, November 1, 2018
• The 10th Oxbridge varsity medical ethics debate-should we fear the rise of direct-to-consumer genetic testing?
  Holland Christian Michael Armstrong et al. Philosophy, ethics, and humanities in medicine : PEHM 2018 Oct 13(1) 14
• The Medical Genome Reference Bank: a whole-genome data resource of 4000 healthy elderly individuals. Rationale and cohort design.
  Lacaze Paul et al. European journal of human genetics : EJHG 2018 Oct
• An infrastructure for precision medicine through analysis of big data.
  Moscatelli Marco et al. BMC bioinformatics 2018 Oct 19(Suppl 10) 351
• Epigenetics: ethics, politics, biosociality.
  Chiapperino Luca et al. British medical bulletin 2018 Oct
• How Sensitive Is Genetic Data?
  Sariyar Murat et al. Biopreservation and biobanking 2017 Dec 15(6) 494-501
• ‘Everyone Will Be Potentially Identifiable’: Booming DNA Testing Means No Identity Is Hidden on the Web
  KV Brown, Bloomberg News, October 11, 2018
• Art and Challenges of Precision Medicine: Interpreting and Integrating Genomic Data Into Clinical Practice.
  Madhavan Subha et al. American Society of Clinical Oncology educational book. American Society of Clinical Oncology. Annual Meeting 2018 May (38) 546-553
• Contributions of Public Health in Reducing the Population Burden of Familial Hypercholesterolemia: Challenges and Opportunities
  MJ Khoury et al, CDC Blog Post, October 17, 2018

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