Ethical, Legal and Social Issues (ELSI)

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Genetics, Insurance and Professional Practice: Survey of the Australasian Clinical Genetics Workforce. Tiller Jane et al. Frontiers in public health 2018 6333 Similar articles in PubMed
Ethical conundrums in pediatric genomics. Rotz Seth J et al. Hematology. American Society of Hematology. Education Program 2018 Nov 2018(1) 301-306 Similar articles in PubMed
The Ethics of Heritable Genome Editing-New Considerations in a Controversial Area Adashi EY et al, JAMA,December 3, 2018
Human Genetics Society of Australasia Position Statement: Genetic Testing and Personal Insurance Products in Australia. Newson Ainsley J et al. Twin research and human genetics : the official journal of the International Society for Twin Studies 2018 Nov 1-5 Similar articles in PubMed
The "African gene" theory: it is time to stop teaching and promoting the slavery hypertension hypothesis. Lujan Heidi L et al. Advances in physiology education 2018 42(3) 412-416 Similar articles in PubMed
Opening the "black box" of informed consent appointments for genome sequencing: a multisite observational study. Sanderson Saskia C et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Oct Similar articles in PubMed
A New Era, New Strategies: Education and Communication Strategies to Manage Greater Access to Genomic Information. Lewis Megan A et al. The Hastings Center report 2018 Jul 48 Suppl 2S25-S27 Similar articles in PubMed
Development of Plain Language Supplemental Materials for the Biobank Informed Consent Process. Drake Bettina F et al. Journal of cancer education : the official journal of the American Association for Cancer Education 2017 Dec 32(4) 836-844 Similar articles in PubMed
[Ethical dilemmas in a general practitioner's clinic due to incidental findings resulting from whole genome sequencing]. Wouters Roel H P et al. Nederlands tijdschrift voor geneeskunde 2018 Jun 162 Similar articles in PubMed
Genomic information and a person's right not to know: A closer look at variations in hypothetical informational preferences in a German sample. Flatau Laura et al. PloS one 2018 13(6) e0198249 Similar articles in PubMed
NIH seeks health data of 1 million people, with genetic privacy suddenly an issue L Bernstein, Washington Post, May 2, 2018
How Genetics Is Changing Our Understanding of ‘Race’  D Reich, New York Times, Mar 23, 2018
Effect of deliberation on the public's attitudes toward consent policies for biobank research. Tomlinson Tom et al. European journal of human genetics : EJHG 2018 Jan Similar articles in PubMed
Developing the science and methods of community engagement for genomic research and biobanking in Africa. Tindana P et al. Global health, epidemiology and genomics 2017 2e13 Similar articles in PubMed
One small edit for humans, one giant edit for humankind? Points and questions to consider for a responsible way forward for gene editing in humans. Howard Heidi C et al. European journal of human genetics : EJHG 2017 Nov Similar articles in PubMed
Ethics and Genetics: Examining a Crossroads in Nursing Through a Case Study . Curr Beamer Laura Curr et al. Clinical journal of oncology nursing 2017 Dec 21(6) 730-737 Similar articles in PubMed
Online Education and e-Consent for GeneScreen, a Preventive Genomic Screening Study. Cadigan R Jean et al. Public health genomics 2017 Oct Similar articles in PubMed
Readability of informed consent forms for whole-exome and whole-genome sequencing. Niemiec Emilia et al. Journal of community genetics 2017 Aug Similar articles in PubMed
A Culture of Understanding: Reflections and Suggestions from a Genomics Research Community Board. Kaplan Benjamin et al. Progress in community health partnerships : research, education, and action 2017 11(2) 161-165 Similar articles in PubMed
The Benefits and Challenges of Preconsent in a Multisite, Pediatric Sickle Cell Intervention Trial. Nimmer Mark et al. Pediatric blood & cancer 2016 Sep 63(9) 1649-52 Similar articles in PubMed
Health-Related Genetic Direct-to-Consumer Tests in the German Setting: The Available Offer and the Potential Implications for a Solidarily Financed Health-Care System. Plöthner Marika et al. Public health genomics 2017 Jun Similar articles in PubMed
Anticipating the Ethical Challenges of Psychiatric Genetic Testing. Appelbaum Paul S et al. Current psychiatry reports 2017 Jul 19(7) 39 Similar articles in PubMed
A qualitative study of adolescents' understanding of biobanks and their attitudes toward participation, re-contact, and data sharing. Murad Andrea M et al. American journal of medical genetics. Part A 2017 Apr 173(4) 930-937 Similar articles in PubMed
Ethics knowledge of recent paediatric residency graduates: the role of residency ethics curricula. Kesselheim Jennifer C et al. Journal of medical ethics 2016 Dec 42(12) 809-814 Similar articles in PubMed
Combating Racial Health Disparities Through Medical Education: The Need for Anthropological and Genetic Perspectives in Medical Training. Bolnick Deborah A et al. Human biology 2015 Oct 87(4) 361-371 Similar articles in PubMed
Using Genetic Technologies To Reduce, Rather Than Widen, Health Disparities. Smith Caren E et al. Health affairs (Project Hope) 2016 Aug 35(8) 1367-73 Similar articles in PubMed
Is It Desirable that I Must Disclose My Genetic Data to Swiss Private Medical Insurances? Bräm Corina et al. Public health genomics 2016 Aug Similar articles in PubMed
Genetic discrimination lawsuit raises broader concerns about testing, privacy: Case involves middle school student impacted by results of genetic screening test as newborn. et al. American journal of medical genetics. Part A 2016 May 170(5) 1111-2 Similar articles in PubMed
Integrating Public Health and Deliberative Public Bioethics: Lessons from the Human Genome Project Ethical, Legal, and Social Implications Program. Meagher Karen M et al. Public health reports (Washington, D.C. : 1974) 131(1) 44-51 Similar articles in PubMed
The Gene Pool: The Ethics of Genetics in Primary Care. Whitt Karen J et al. Annual review of nursing research 2016 34(1) 119-54 Similar articles in PubMed
Attitudes towards the sharing of genetic information with at-risk relatives: results of a quantitative survey. Heaton Timothy J et al. Human genetics 2015 Nov Similar articles in PubMed
Demographic Differences in Willingness to Provide Broad and Narrow Consent for Biobank Research. Ewing Altovise T et al. Biopreserv Biobank 2015 Mar 31. Similar articles in PubMed
The Impact of Commercialisation and Genetic Data Sharing Arrangements on Public Trust and the Intention to Participate in Biobank Research. Critchley Christine et al. Public Health Genomics 2015 Mar 13. Similar articles in PubMed
A Web-Based Platform for Educating Researchers About Bioethics and Biobanking. Sehovic Ivana et al. J Cancer Educ 2015 Mar 17. Similar articles in PubMed
To know or not to know? Integrating ethical aspects of genomic healthcare in the education of health professionals. Similar articles in PubMed