Genetic counseling|Genomics & Health Impact Scan Database|Search|PHGKB

Genomics & Health Impact Scan Database|Search|PHGKB

From Genomics & Health Impact Scan Database

This database includes published scientific literature on evidence-based translation of genomic discoveries into improved health care and disease prevention that have a potential impact on population health.

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Analysis of Reimbursement of Genetic Counseling Services at a Single Institution in a State Requiring Licensure. Leonhard Jennifer R et al. Journal of genetic counseling 2017 Aug 26(4) 852-858 Similar articles in PubMed
Ethical, social, and cultural issues related to clinical genetic testing and counseling in low- and middle-income countries: a systematic review. Zhong Adrina et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Aug Similar articles in PubMed
Taming the Gene Genie. Greene Jan et al. Managed care (Langhorne, Pa.) 2018 Jul 27(7) 12-15 Similar articles in PubMed
Racism Plays into Concerns About Genomic Info J Frieden, Medpage Today, June 28, 2018
Genomic information and a person's right not to know: A closer look at variations in hypothetical informational preferences in a German sample. Flatau Laura et al. PloS one 2018 13(6) e0198249 Similar articles in PubMed
Current ethical and legal issues in health-related direct-to-consumer genetic testing. Niemiec Emilia et al. Personalized medicine 2017 Sep 14(5) 433-445 Similar articles in PubMed
Direct-to-Consumer Genetic Testing: The Implications of the US FDA's First Marketing Authorization for BRCA Mutation Testing. Gill Jennifer, et al. JAMA 2018 6 0. (23) 2377-2378 Similar articles in PubMed
The FDA says you can now test yourself for cancer at home without a doctor. Here's why you shouldn't.  D Ropeik, NBC News Blog, Mar 23, 2018
Key Ethical Issues in Prenatal Genetics: An Overview. Farrell Ruth M et al. Obstetrics and gynecology clinics of North America 2018 Mar 45(1) 127-141 Similar articles in PubMed
Ethical quandaries around expanded carrier screening in third-party reproduction. Mertes Heidi et al. Fertility and sterility 2018 Feb 109(2) 190-194 Similar articles in PubMed
Reconsidering the duty to warn genetically at-risk relatives. Rothstein Mark A et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Feb Similar articles in PubMed
Ethical issues in neurogenetics. Uhlmann Wendy R et al. Handbook of clinical neurology 2018 14723-36 Similar articles in PubMed
Conflicts of interest in genetic counseling: addressing and delivering. Iacoboni Daniela et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Jan Similar articles in PubMed
Mitochondrial donation and 'the right to know'. Brandt Reuven et al. Journal of medical ethics 2016 Oct 42(10) 678-84 Similar articles in PubMed
Right to know and right to ignore in paediatric oncogenetics: Identifying biological causes, or seeking for meaning? Bourdeaut Franck et al. European journal of cancer (Oxford, England : 1990) 2016 6353-4 Similar articles in PubMed
Possible barriers for genetic counselors returning actionable genetic research results across state lines. Roberts Megan C et al. Genetics in medicine : official journal of the American College of Medical Genetics 2017 Nov 19(11) 1202-1204 Similar articles in PubMed
Ethical considerations in gene therapy. Levin Alex V et al. Ophthalmic genetics 2016 37(3) 249-51 Similar articles in PubMed
Ethical issues with newborn screening in the genomics era. Tarini Beth A et al. Annual review of genomics and human genetics 2012 13381-93 Similar articles in PubMed
Does a duty of disclosure foster special treatment of genetic research participants? Hayeems Robin Z et al. Journal of genetic counseling 2013 Oct 22(5) 654-61 Similar articles in PubMed
National Society of Genetic Counselors Code of Ethics. et al. Journal of genetic counseling 2017 Oct Similar articles in PubMed
National Society of Genetic Counselors Code of Ethics: Explication of 2017 Revisions. Senter Leigha et al. Journal of genetic counseling 2017 Oct Similar articles in PubMed
Variation among Consent Forms for Clinical Whole Exome Sequencing. Fowler Sara A et al. Journal of genetic counseling 2017 Jul Similar articles in PubMed
Public's Views toward Return of Secondary Results in Genomic Sequencing: It's (Almost) All about the Choice. Ryan Kerry A et al. Journal of genetic counseling 2017 Mar Similar articles in PubMed
Ethical issues in genetic counseling. Than Nandor Gabor et al. Best practice & research. Clinical obstetrics & gynaecology 2017 Jan Similar articles in PubMed
Different concepts and models of information for family-relevant genetic findings: comparison and ethical analysis. Lenk Christian et al. Medicine, health care, and philosophy 2015 Aug 18(3) 393-408 Similar articles in PubMed
Predictive Genetic Testing of Children for Adult-Onset Conditions: Negotiating Requests with Parents. Fenwick Angela et al. Journal of genetic counseling 2016 Sep Similar articles in PubMed
Comparison of Informed Consent Preferences for Multiplex Genetic Carrier Screening among a Diverse Population. Reeves Ashley et al. Journal of genetic counseling 2016 Feb 25(1) 166-78 Similar articles in PubMed
"Not Tied Up Neatly with a Bow": Professionals' Challenging Cases in Informed Consent for Genomic Sequencing. Tomlinson Ashley N et al. Journal of genetic counseling 2016 Feb 25(1) 62-72 Similar articles in PubMed
What can we Learn from Patients' Ethical Thinking about the right 'not to know' in Genomics? Lessons from Cancer Genetic Testing for Genetic Counselling. Cowley Lorraine et al. Bioethics 2016 Aug Similar articles in PubMed
Risk for Patient Harm in Canadian Genetic Counseling Practice: It's Time to Consider Regulation. Shugar Andrea L et al. Journal of genetic counseling 2016 Jun Similar articles in PubMed
Ethical considerations in biobanks: how a public health ethics perspective sheds new light on old controversies. Virani Alice Hawkins et al. Journal of genetic counseling 2015 Jun 24(3) 428-32 Similar articles in PubMed
Informed consent form challenges for genetic research in a developing Arab country with high risk for genetic disease. Nair Satish Chandrasekhar et al. Journal of genetic counseling 2015 Apr 24(2) 294-9 Similar articles in PubMed
The Genetic Counselor's Role in Managing Ethical Dilemmas Arising in the Laboratory Setting. Balcom Jessica R et al. Journal of genetic counseling 2016 Apr Similar articles in PubMed
Legislation on Genetic Diagnosis: Comparison of South Korea and Germany: - With Focus on the Application and Communication Structure. Kim Na-Kyoung et al. Development & reproduction 2015 Jun 19(2) 111-8 Similar articles in PubMed
Privacy and confidentiality measures in genetic testing and counselling: arguing on genetic exceptionalism again? Witt Magdalena M et al. Journal of applied genetics 2016 Feb Similar articles in PubMed
In response to Peshkin et al. "Genetic counseling and testing for hereditary cancer risk in young adult women: Facilitating autonomy and informed decision making is key". Powell C Bethan et al. Gynecologic oncology reports 2015 Nov 1446 Similar articles in PubMed
Genetic counseling and testing for hereditary cancer risk in young adult women: Facilitating autonomy and informed decision making is key. Peshkin Beth N et al. Gynecologic oncology reports 2015 Nov 1444-5 Similar articles in PubMed
Potential Psychosocial Risks of Sequencing Newborns. Frankel Leslie Ann et al. Pediatrics 2016 Jan 137 Suppl 1S24-9 Similar articles in PubMed
Direct-to-consumer genomics on the scales of autonomy. Vayena Effy et al. Journal of medical ethics 2015 Apr 41(4) 310-4 Similar articles in PubMed
Genetic Test Results and Disclosure to Family Members: Qualitative Interviews of Healthcare Professionals' Perceptions of Ethical and Professional Issues in France. D' Audiffret Van Haecke Diane et al. Journal of genetic counseling 2015 Oct Similar articles in PubMed
Ethical considerations in presymptomatic diagnosis of autosomal dominant spinocerebellar ataxias. Orozco-Gutiérrez M H et al. Neurologia 2015 Aug 21. Similar articles in PubMed
Military Health Care Dilemmas and Genetic Discrimination: A Family's Experience with Whole Exome Sequencing. Helm Benjamin M et al. Narrat Inq Bioeth 2015 5(2) 179-86 Similar articles in PubMed
Chloe's Law: A Powerful Legislative Movement Challenging a Core Ethical Norm of Genetic Testing. Caplan Arthur L et al. PLoS Biol. 2015 Aug 13(8) e1002219 Similar articles in PubMed
Genetics and Personal Insurance: the Perspectives of Canadian Cancer Genetic Counselors. Lane Michelle et al. J Genet Couns 2015 May 1. Similar articles in PubMed
Legal, ethical issues loom over topic of recontacting patients: Advances in research, next-generation sequencing lead geneticists to consider approaching former patients with results about genetic variants. Am. J. Med. Genet. A 2015 Apr 167(4) vii-viii Similar articles in PubMed
Legislation in the genomic era: the Affordable Care Act and genetic testing for cancer risk assessment. Similar articles in PubMed
Ethical Considerations of Population Screening for Late-Onset Genetic Disease. Similar articles in PubMed