The Open Data Explosion V Callier, The Scientist, January 2`019

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Last Posted: Jan 16, 2019

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• The Open Data Explosion
  V Callier, The Scientist, January 2`019
• BRCA Exchange: Data sharing for the Benefit of Science and Medicine 
  Global Alliance for Genetics and Health, 2019
• Evidence-based data and rare cancers: The need for a new methodological approach in research and investigation.
  Mathoulin-Pélissier S et al. European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology 2019 45(1) 22-30
• BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2.
  Cline Melissa S et al. PLoS genetics 2018 Dec 14(12) e1007752
• Clinical and genetic heterogeneity in Dubowitz syndrome: Implications for diagnosis, management and further research.
  Innes A Micheil et al. American journal of medical genetics. Part C, Seminars in medical genetics 2018 Dec 178(4) 387-397
• Genes wide open: Data sharing and the social gradient of genomic privacy.
  Haeusermann Tobias et al. AJOB empirical bioethics 2018 Dec 1-15
• Genetic and Genomic Consultation: Are We Ready for Direct-to-Consumer Telegenetics?
  Du Li et al. Frontiers in genetics 2018 9550
• FDA takes new action to advance the development of reliable and beneficial genetic tests that can improve patient care
  FDA Press Release, December 4, 2018
• Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance problems?
  Shabani Mahsa et al. Journal of the American Medical Informatics Association : JAMIA 2018 Nov
• Personal Genome Project UK (PGP-UK): a research and citizen science hybrid project in support of personalized medicine.
  et al. BMC medical genomics 2018 Nov 11(1) 108

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