Last Posted: Aug 15, 2019
- Comprehensive evaluation of a prospective Australian patient cohort with suspected genetic kidney disease undergoing clinical genomic testing: a study protocol.
Jayasinghe Kushani et al. BMJ open 2019 Aug 9(8) e029541 - A Professional Standard for Informed Consent for Stem Cell Therapies
J Sugarman et al, JAMA, August 12, 2019 - A training and education program for genome medical research coordinators in the genome cohort study of the Tohoku Medical Megabank Organization.
Sakurai-Yageta Mika et al. BMC medical education 2019 Aug 19(1) 297 - Familial Cancer: How to Successfully Recruit Families for Germline Mutations Studies? Multiple Myeloma as an Example.
Blocka Joanna et al. Clinical lymphoma, myeloma & leukemia 2019 Jul - From Targeting Somatic Mutations to Finding Inherited Cancer Predispositions: The Other Side of the Coin.
Pujol Pascal et al. Diagnostics (Basel, Switzerland) 2019 Jul 9(3) - Time to discuss consent in digital-data studies
Nature editorial, July 31, 2019 - A tailored approach towards informing relatives at risk of inherited cardiac conditions: study protocol for a randomised controlled trial.
van den Heuvel Lieke M et al. BMJ open 2019 Jul 9(7) e025660 - Attitudes Regarding Enrollment in a Genetic Research Project: An Informed Consent Simulation Study Comparing Views of People With Depression, Diabetes, and Neither Condition.
Kim Jane Paik et al. Journal of empirical research on human research ethics : JERHRE 2019 Jul 1556264619862467 - Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium.
Yu Joon-Ho et al. Personalized medicine 2019 Jul - Consent and Autonomy in the Genomics Era.
Horton Rachel et al. Current genetic medicine reports 2019 7(2) 85-91
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