New! Sickle Cell Disease Annual Data Reports and Fact Sheets

New! Sickle Cell Disease Annual Data Reports and Fact Sheets

The Sickle Cell Data Collection (SCDC) program determines the number of people living with sickle cell disease (SCD) and monitors changes related to their health over time.

Data Reports

SCDC data reports for 2005 and 2010–2016 for California and 2005 and 2010–2015 for Georgia are now available online.

The maps and figures in these reports represent data on demographics (e.g., age, sex, and geographic information), hospitalizations, and emergency department visits for individuals with SCD living in California and Georgia. 

SCDC identified 4,689 people with SCD living in California in 2016 and 8,017 people with SCD living in Georgia in 2015.

Fact Sheets

Two new fact sheets highlight the most recent annual SCDC data for California (2016) and Georgia (2015):

• “Sickle Cell Disease in…” provides an overview of the demographics and healthcare utilization patterns of people with SCD and is targeted to members of the general public looking for basic information about those living with SCD.

“Hospital and Emergency Department (ED) Utilization for People with SCD” provides additional details about healthcare utilization patterns in this population (including readmission and payer information) and is targeted to policy officials, public health professionals, and SCD organizations.

Recent Publications

• Tanabe P, Spratling R, Smith D, Grissom P, Hulihan M. Understanding the Complications of Sickle Cell Disease. Am J Nurs. 2019 Jun;119(6):26-35.
• Snyder AB, Zhou M, Theodore R, Quarmyne MO, Eckman J, Lane PA. Improving an Administrative Case Definition for Longitudinal Surveillance of Sickle Cell Disease. Public Health Rep. 2019 May/Jun;134(3):274-281.

Find more publications and scientific articles on SCD. 

Additional Resources

• Sickle Cell Data Collection Brief: Births in Georgia, 2004-2016
• Sickle Cell Data Collection Program Brief: Access to Care for Children
• “Too Many Children Live Too Far From Sickle Cell Treatment They Need” (AJC article)
• CDC’s Sickle Cell Data Collection (SCDC) Program
• CDC’s Sickle Cell Disease Surveillance History

Share these resources with your family, friends, and colleagues! Want to learn more about SCD? Visit our SCD website. For the latest updates and resources, follow us on Twitter @CDC_NCBDDD.