When hoofbeats really are a zebra’s, a rare-disease community helps me

When hoofbeats really are a zebra’s, a rare-disease community helps me

When the hoofbeats really are a zebra’s, a patient community helps me navigate a new rare-disease reality

By JENNIFER ADAEZE OKWEREKWU

MIKE REDDY FOR STAT

"Unexpected" is how I understand our new normal living with a rare disease. This has opened my eyes to the importance of patient communities. 

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