domingo, 1 de enero de 2017

Translation in healthcare: ethical, legal, and social implications

Translation in healthcare: ethical, legal, and social implications
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Biomed Central

Translation in healthcare: ethical, legal, and social implications

Edited by Donna Dickenson, Sandra Soo-Jin Lee, and Michael Morrison
New technologies are transforming and reconfiguring the boundaries between patients, research participants and consumers, between research and clinical practice, and between public and private domains. From personalised medicine to big data and social media, the new kinds of interactions enabled by these platforms hold the potential to empower citizens, challenge long-standing ideas such as privacy, and raise fundamental questions about how the translational patient pathway should be organised.
The ‘Translation in Healthcare: Exploring the Impact of Emerging Technologies’ conference 2015 hosted by the Centre for Health, Law and Emerging Technologies (HeLEX) at the University of Oxford brought together a wide range of voices to discuss and think more deeply about the technological, legal, ethical, and social challenges raised by new technologies in healthcare. In this cross-journal collection articles are brought together from BMC Medical Ethics and BMC Medical Genomics.
This collection of articles has not been sponsored and articles have undergone the journal’s standard peer-review process. The Guest Editors declare no competing interests. 

    “A rising tide lifts all boats”: establishing a multidisciplinary genomic tumor board for breast cancer patients with advanced disease

    Research suggests that multidisciplinary genomic tumor boards (MGTB) can inform cancer patient care, though little is known about factors influencing how MGTBs interpret genomic test results, make recommendati...
    Michelle L. McGowan, Roselle S. Ponsaran, Paula Silverman, Lyndsay N. Harris and Patricia A. Marshall
    BMC Medical Genomics 2016 9:71
    Published on: 21 November 2016

    If you build it, they will come: unintended future uses of organised health data collections

    Health research increasingly relies on organized collections of health data and biological samples. There are many types of sample and data collections that are used for health research, though these are colle...
    Kieran C. O’Doherty, Emily Christofides, Jeffery Yen, Heidi Beate Bentzen, Wylie Burke, Nina Hallowell, Barbara A. Koenig and Donald J. Willison
    BMC Medical Ethics 2016 17:54
    Published on: 6 September 2016

    Known unknowns: building an ethics of uncertainty into genomic medicine

    Genomic testing has reached the point where, technically at least, it can be cheaper to undertake panel-, exome- or whole genome testing than it is to sequence a single gene. An attribute of these approaches i...
    Ainsley J. Newson, Samantha J. Leonard, Alison Hall and Clara L. Gaff
    BMC Medical Genomics 2016 9:57
    Published on: 1 September 2016

    Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan

    As in other countries, the traditional doctor-patient relationship in the Japanese healthcare system has often been characterised as being of a paternalistic nature. However, in recent years there has been a g...
    Victoria Coathup, Harriet J. A. Teare, Jusaku Minari, Go Yoshizawa, Jane Kaye, Masanori P. Takahashi and Kazuto Kato
    BMC Medical Ethics 2016 17:51
    Published on: 24 August 2016

    Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era

    Biobanks have been heralded as essential tools for translating biomedical research into practice, driving precision medicine to improve pathways for global healthcare treatment and services. Many nations have ...
    Don Chalmers, Dianne Nicol, Jane Kaye, Jessica Bell, Alastair V. Campbell, Calvin W. L. Ho, Kazuto Kato, Jusaku Minari, Chih-hsing Ho, Colin Mitchell, Fruzsina Molnár-Gábor, Margaret Otlowski, Daniel Thiel, Stephanie M. Fullerton and Tess Whitton
    BMC Medical Ethics 2016 17:39
    Published on: 12 July 2016

    Challenges and opportunities for ELSI early career researchers

    Over the past 25 years, there has been growing recognition of the importance of studying the Ethical, Legal and Social Implications (ELSI) of genetic and genomic research. A large investment into ELSI research...
    Jessica Bell, Mirko Ancillotti, Victoria Coathup, Sarah Coy, Tessel Rigter, Travis Tatum, Jasjote Grewal, Faruk Berat Akcesme, Jovana Brkić, Anida Causevic-Ramosevac, Goran Milovanovic, Marianna Nobile, Cristiana Pavlidis, Teresa Finlay and Jane Kaye
    BMC Medical Ethics 2016 17:37
    Published on: 8 July 2016

    Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives

    The language of “participant-driven research,” “crowdsourcing” and “citizen science” is increasingly being used to encourage the public to become involved in research ventures as both subjects and scientists. ...
    J. Patrick Woolley, Michelle L. McGowan, Harriet J. A. Teare, Victoria Coathup, Jennifer R. Fishman, Richard A. Settersten, Sigrid Sterckx, Jane Kaye and Eric T. Juengst
    BMC Medical Ethics 2016 17:33
    Published on: 4 June 2016

    Attitudes to incorporating genomic risk assessments into population screening programs: the importance of purpose, context and deliberation

    The use of an overall risk assessment based on genomic information is consistent with precision medicine. Despite the enthusiasm, there is a need for public engagement on the appropriate use of such emerging t...
    Stuart G. Nicholls, Holly Etchegary, June C. Carroll, David Castle, Louise Lemyre, Beth K. Potter, Samantha Craigie and Brenda J. Wilson
    BMC Medical Genomics 2016 9:25
    Published on: 23 May 2016

    Clinical decision-making and secondary findings in systems medicine

    Systems medicine is the name for an assemblage of scientific strategies and practices that include bioinformatics approaches to human biology (especially systems biology); “big data” s...
    T. Fischer, K.B. Brothers, P. Erdmann and M. Langanke
    BMC Medical Ethics 2016 17:32
    Published on: 21 May 2016

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