Newborn screening: Ethical, Legal and Social Issues (ELSI)

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Publication
Leveraging Evidence-Based Public Policy and Advocacy to Advance Newborn Screening in California. Bronstein Max G et al. Pediatrics 2019 Jan Similar articles in PubMed
ETHICS EVALUATION REVEALING DECISION-MAKER MOTIVES: A CASE OF NEONATAL SCREENING. Raimond Véronique et al. International journal of technology assessment in health care 2018 Jan 34(2) 189-195 Similar articles in PubMed
Eugenics Redux: "Reproductive Benefit" as a Rationale for Newborn Screening. Paul Diane B et al. The Hastings Center report 2018 Jul 48 Suppl 2S12-S13 Similar articles in PubMed
The Legal Dimensions of Genomic Sequencing in Newborn Screening. Zacharias Rachel L et al. The Hastings Center report 2018 Jul 48 Suppl 2S39-S41 Similar articles in PubMed
Including ELSI research questions in newborn screening pilot studies. Goldenberg Aaron J et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Aug Similar articles in PubMed
The Complexities of Ascertaining Public Preferences for Newborn Screening Policies. Ross Lainie Friedman et al. The Journal of pediatrics 2018 Jul Similar articles in PubMed
Fostering caring relationships: Suggestions to rethink liberal perspectives on the ethics of newborn screening. van der Burg Simone et al. Bioethics 2018 Mar 32(3) 171-183 Similar articles in PubMed
Ethical issues with newborn screening in the genomics era. Tarini Beth A et al. Annual review of genomics and human genetics 2012 13381-93 Similar articles in PubMed
An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots. Rothwell Erin et al. Journal of empirical research on human research ethics : JERHRE 2017 Oct 1556264617736199 Similar articles in PubMed
Ethical issues in pediatric genetic testing and screening. Botkin Jeffrey R et al. Current opinion in pediatrics 2016 Sep Similar articles in PubMed
Using Newborn Screening Bloodspots for Research: Public Preferences for Policy Options. Hayeems Robin Z et al. Pediatrics 2016 May Similar articles in PubMed
Screening Out Controversy: Human Genetics, Emerging Techniques of Diagnosis, and the Origins of the Social Issues Committee of the American Society of Human Genetics, 1964-1973. Mitchell M X et al. Journal of the history of biology 2016 Feb Similar articles in PubMed
Introduction to Bioethics Special Supplement V: Ethical Issues in Genomic Testing of Children. Lantos John D et al. Pediatrics 2016 Jan 137 Suppl 1S1-2 Similar articles in PubMed
Whole-Genome Screening of Newborns? The Constitutional Boundaries of State Newborn Screening Programs. King Jaime S et al. Pediatrics 2016 Jan 137 Suppl 1S8-S15 Similar articles in PubMed
Potential Psychosocial Risks of Sequencing Newborns. Frankel Leslie Ann et al. Pediatrics 2016 Jan 137 Suppl 1S24-9 Similar articles in PubMed
Parental Consent for the Use of Residual Newborn Screening Bloodspots: Respecting Individual Liberty vs Ensuring Public Health. Bayefsky Michelle J et al. JAMA 2015 Jun 8. Similar articles in PubMed
New consent requirements for newborn screening raise concerns. Yan Wudan et al. Nat. Med. 2015 Jun 4. 21(6) 542-3 Similar articles in PubMed
Ethics, genetics and public policies in Uruguay: newborn and infant screening as a paradigm. Larrandaburu Mariela et al. J Community Genet 2015 May 29. Similar articles in PubMed
Ethical and Policy Issues in Newborn Screening of Children for Neurologic and Developmental Disorders. Ross Lainie Friedman et al. Pediatr. Clin. North Am. 2015 Jun 62(3) 787-798 Similar articles in PubMed
Stakeholder engagement in policy development: challenges and opportunities for human genomics. Lemke Amy A et al. Genet. Med. 2015 Mar 12. Similar articles in PubMed