PERSONAL GENOMICS [NEW TOPIC PAGE] Ethical, Legal and Social Issues (ELSI)

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Publication
Genetics Start-Up Wants to Sequence People’s Genomes for Free K Weintrob, Scientific American, November 2018
Direct-to-Consumer Tests with Marketing Authorization FDA, 2018
Behind at-home DNA testing companies sharing genetic data with third parties CBS This Morning, August 2, 2018
Ethical Implications of Direct-to-Consumer Hereditary Cancer Tests. Kilbride Madison K et al. JAMA oncology 2018 Jul Similar articles in PubMed
Deleting your online DNA data is brutally difficult KV Brown, Bloomberg News, June 15, 2018
5 biggest risks of sharing your DNA with consumer genetic-testing companies CNBC, June 16, 2018
FDA Lifts Some Regulatory Hurdles for Genetic Health Risk Tests as Planned Genomeweb, June 5, 2018
The FDA says you can now test yourself for cancer at home without a doctor. Here's why you shouldn't.  D Ropeik, NBC News Blog, Mar 23, 2018
Is direct-to-consumer genetic testing reifying race?  T Caulfield, the Cure, Mar 22, 2018
Third party interpretation of raw genetic data: an ethical exploration. Badalato Lauren et al. European journal of human genetics : EJHG 2017 Aug Similar articles in PubMed