Ethical, Legal and Social Issues (ELSI) - Whole genome sequencing [NEW TOPIC PAGE]

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Factors complicating the informed consent process for whole exome sequencing in neonatal and pediatic intensive care units. Diamonstein Callie J et al. Journal of genetic counseling 2019 Feb Similar articles in PubMed
Beyond medical actionability: Public perceptions of important actions in response to hypothetical genetic testing results. Seiffert David J et al. Journal of genetic counseling 2019 Feb Similar articles in PubMed
Return of individual genomic research results: are laws and policies keeping step? Thorogood Adrian et al. European journal of human genetics : EJHG 2019 Jan Similar articles in PubMed
Ethical conundrums in pediatric genomics. Rotz Seth J et al. Hematology. American Society of Hematology. Education Program 2018 Nov 2018(1) 301-306 Similar articles in PubMed
Resisting Paternalism in Prenatal Whole-Genome Sequencing. Rhodes Rosamond et al. The American journal of bioethics : AJOB 2017 17(1) 35-37 Similar articles in PubMed
Response to Open Peer Commentaries on "A Framework for Unrestricted Prenatal Whole-Genome Sequencing: Respecting and Enhancing the Autonomy of Prospective Parents". Chen Stephanie C et al. The American journal of bioethics : AJOB 2017 17(1) W1-W3 Similar articles in PubMed
A New Era, New Strategies: Education and Communication Strategies to Manage Greater Access to Genomic Information. Lewis Megan A et al. The Hastings Center report 2018 Jul 48 Suppl 2S25-S27 Similar articles in PubMed
[Ethical dilemmas in a general practitioner's clinic due to incidental findings resulting from whole genome sequencing]. Wouters Roel H P et al. Nederlands tijdschrift voor geneeskunde 2018 Jun 162 Similar articles in PubMed
Consent and participation in the 100,000 Genomes Project – public attitudes Genomics England, July 18, 2018
Incidental or secondary findings: an integrative and patient-inclusive approach to the current debate. Saelaert Marlies et al. European journal of human genetics : EJHG 2018 Jul Similar articles in PubMed
Ethical Implications of Rapid Whole-Genome Sequencing in Neonates. Bell Susan Givens et al. Neonatal network : NN 2018 Jan 37(1) 42-44 Similar articles in PubMed
Genomics England's implementation of its public engagement strategy: Blurred boundaries between engagement for the United Kingdom's 100,000 Genomes project and the need for public support. Samuel Gabrielle Natalie et al. Public understanding of science (Bristol, England) 2017 Dec 963662517747200 Similar articles in PubMed
Ethical issues with newborn screening in the genomics era. Tarini Beth A et al. Annual review of genomics and human genetics 2012 13381-93 Similar articles in PubMed
Readability of informed consent forms for whole-exome and whole-genome sequencing. Niemiec Emilia et al. Journal of community genetics 2017 Aug Similar articles in PubMed
The elusive ideal of inclusiveness: lessons from a worldwide survey of neurologists on the ethical issues raised by whole-genome sequencing. Hurlimann Thierry et al. BMC medical ethics 2017 Apr 18(1) 28 Similar articles in PubMed
Whole genome sequencing in children: ethics, choice and deliberation. Newson Ainsley J et al. Journal of medical ethics 2017 Jan Similar articles in PubMed
Genomic Test Results and the Courtroom: The Roles of Experts and Expert Testimony. Ramos Edward et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2016 Mar 44(1) 205-15 Similar articles in PubMed
The challenge of consent in clinical genome-wide testing. Burke Katherine et al. Archives of disease in childhood 2016 Apr Similar articles in PubMed
Ethical issues in consumer genome sequencing: Use of consumers' samples and data. Niemiec Emilia et al. Applied & translational genomics 2016 Mar 823-30 Similar articles in PubMed
Whole-Genome Screening of Newborns? The Constitutional Boundaries of State Newborn Screening Programs. King Jaime S et al. Pediatrics 2016 Jan 137 Suppl 1S8-S15 Similar articles in PubMed
Genomic Databases and Biobanks in Denmark. Hartlev Mette et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 743-53 Similar articles in PubMed
Return of genetic testing results in the era of whole-genome sequencing. Knoppers Bartha Maria et al. Nat. Rev. Genet. 2015 Aug 4. Similar articles in PubMed
Whole-genome sequencing in critically ill infants and emerging ethical challenges. Char Danton S et al. Lancet Respir Med 2015 Apr 27. Similar articles in PubMed
Overcoming challenges to meaningful informed consent for whole genome sequencing in pediatric cancer research. Oberg Jennifer A et al. Pediatr Blood Cancer 2015 Apr 1. Similar articles in PubMed