Attitudes of French populations towards the disclosure of unsolicited findings in medical genetics. - PubMed - NCBI

Attitudes of French populations towards the disclosure of unsolicited findings in medical genetics. - PubMed - NCBI

J Health Psychol. 2019 Nov 11:1359105319886622. doi: 10.1177/1359105319886622. [Epub ahead of print]

Attitudes of French populations towards the disclosure of unsolicited findings in medical genetics.

Rosier M1, Guedj M1, Calvas P2, Julia S3, Garnier C2, Cambon-Thomsen A3, Muñoz Sastre MT1.

Author information

1

Université de Toulouse, France.

2

Hôpital Purpan, France.

3

Inserm UMR 1027, France.

Abstract

Next-generation sequencing techniques enable unsolicited findings to be detected. This discovery raises ethical questions concerning the return of these findings. Our study aimed to highlight the views of the general public, patients under supervision and health professionals concerning the acceptability of disclosing unsolicited results to patients. In total, 449 participants assessed scenarios, consisted of all combinations of three factors (patient's information and consent, prevention and treatment of the unsolicited disease and doctor's decision). The response profiles were grouped into six clusters. The participants took ethical aspects into account, but health professionals also considered the medical aspects to a greater extent.

KEYWORDS:

biomedical ethics; disclosure to patients; medical genetics; next-generation sequencing; unsolicited findings

PMID:

 

31707852

 

DOI:

 

10.1177/1359105319886622