Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report... - PubMed - NCBI

Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report... - PubMed - NCBI

J Health Care Poor Underserved. 2019;30(4S):21-26. doi: 10.1353/hpu.2019.0111.

Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report from the Field.

Hull SC.

Abstract

"Changing the conversation" around genomic research with U.S. tribal communities may lead to new pathways to address persistent health disparities. Restoring trustworthiness between researchers and communities entails a willingness to listen to Indigenous voices, being flexible, and refining existing policies and frameworks to adapt to communities' needs.

PMID:

 

31735714

 

DOI:

 

10.1353/hpu.2019.0111