Direct to Consumer Genomics: Science, Autonomy & Oversight

Direct to Consumer Genomics: Science, Autonomy & Oversight

What is direct-to-consumer genetic testing? From the NIH Genetics Home Reference

Innovation, risk, and patient empowerment, the FDA-mandated withdrawal of 23andMe’s personal genome service
N Downing et al. JAMA, January 27, 2014

Bridging the consumer-medical divide: How to regulate direct-to-consumer genetic testing 
Edwards KT & Huang CJ Hastings Cent Rep 2014 May;44(3):17-9

Direct-to-consumer genomics on the scales of autonomy. 
Effy Vayena. J. Med Ethics May 5, 2014

Influence of individual differences in disease perception on consumer response to direct-to-consumer genomic testing 
Boeldt DL, et al. Clin Genet 2014 May

Consumer gene tests face uncertain future, by Andrea Kissack, KQED, May 5

Direct-to-consumer genetic testing: a case of potential harm, by Nancy Fliesler, Vector, May 5

Naming and framing in genomic testing
Bunnik E, et al. Trends Mol Med. 2014 Feb;20(2):63-5.

CDC blog post: Think after you spit-personal genomics and the teachable moment (2012)