Development of a consent resource for genomic data sharing in the clinical setting.

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Last Posted: Jun 21, 2018

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• Development of a consent resource for genomic data sharing in the clinical setting.  
  Riggs Erin Rooney et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Jun
• Ethical concerns on sharing genomic data including patients' family members.  
  Takashima Kyoko et al. BMC medical ethics 2018 Jun 19(1) 61
• Real-time Protection of Genomic Data Sharing in Beacon Services.  
  Bu Diyue et al. AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science 2018 201745-54
• Clinical Trial Participants' Views of the Risks and Benefits of Data Sharing.  
  Mello Michelle M et al. The New England journal of medicine 2018 Jun 378(23) 2202-2211
• AMCP Partnership Forum: Managing Care in the Wave of Precision Medicine.  
  et al. Journal of managed care & specialty pharmacy 2018 May 1-6
• DNA donors must demand stronger protection for genetic privacy  
  M Marks, et al, Stat News, May 30, 2018
• Data Sharing For Precision Medicine: Policy Lessons And Future Directions.  
  Blasimme Alessandro et al. Health affairs (Project Hope) 2018 May 37(5) 702-709
• Real-World Evidence In Support Of Precision Medicine: Clinico-Genomic Cancer Data As A Case Study.  
  Agarwala Vineeta et al. Health affairs (Project Hope) 2018 May 37(5) 765-772
• Data Sharing For Precision Medicine: Policy Lessons And Future Directions  
  A Blasimmme et al, Health Affairs, May 2018
• AACR Project GENIE: Powering Precision Medicine through an International Consortium.  
  et al. Cancer discovery 2017 7(8) 818-831

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