Sociogenetic Risks - Ancestry DNA Testing, Third-Party Identity, and Protection of Privacy

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Last Posted: Jun 21, 2018

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• Sociogenetic Risks - Ancestry DNA Testing, Third-Party Identity, and Protection of Privacy.  
  May Thomas et al. The New England journal of medicine 2018 Jun
• "I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research.  
  Lee Sandra S-J et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Jun
• 5 biggest risks of sharing your DNA with consumer genetic-testing companies  
  CNBC, June 16, 2018
• Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study.  
  Litzkendorf Svenja et al. JMIR research protocols 2018 May 7(5) e112
• Deleting your online DNA data is brutally difficult  
  KV Brown, Bloomberg News, June 15, 2018
• Ethical concerns on sharing genomic data including patients' family members.  
  Takashima Kyoko et al. BMC medical ethics 2018 Jun 19(1) 61
• I handed over my genetic data to the NIH. Here’s why you should, too  
  E Dishman, All of uS, StatNews, June 13, 2018
• Identification of individuals by trait prediction using whole-genome sequencing data.  
  Lippert Christoph et al. Proceedings of the National Academy of Sciences of the United States of America 2017 114(38) 10166-10171
• Lawmakers press genetic testing companies for details on their privacy policies,  
  by Megan Thielking, STAT, June 21, 2018
• Online genetic test gives woman false hope of cancer-free life  
  C Harrop, CBC News, June 20, 2018

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