Rare Disease Policy | www.eurordis.org

Rare Disease Policy | www.eurordis.org



The Voice of Rare Disease
Patients in Europe

Decide

Launched in May 2009 within the POLKA project, the Decide rare disease discussion kits are designed to empower patients and their representatives to become advocates for their cause. The Decide sessions have helped numerous rare disease patients to voice their opinions, to feel more confident and to have, at last, a say in decision making.

 

About rare disease Decide

Learn about the Decide method and how it’s being used by the rare disease community.

read more...

 

Why get involved?

Learn why thousands of people have become involved so far and why you should too.

read more...

 

How to participate?

Learn how to organise your own Decide session and start giving your input into rare disease issues.

read more...

 

Discover the topics

Six Decide discussion topics were created in 22 European languages to help empower patients and patient representatives.

read more...

 

Flickr gallery

Barcelona, Krakow, Brussels…just a few of the places that Decide sessions have been held. Visit the Decide gallery on Flickr.

read more..