Last Posted: Jan 02, 2020
- Access and Management: Indigenous Perspectives on Genomic Data Sharing.
Garrison Nanibaa' A et al. Ethnicity & disease 2019 29(Suppl 3) 659-668 - Genomic variant sharing: a position statement.
Wright Caroline F et al. Wellcome open research 2019 422 - Psychological factors that determine people's willingness-to-share genetic data for research.
Bearth Angela et al. Clinical genetics 2019 Dec - Qatar Biobank: A Paradigm of Translating Biobank Science into Evidence-Based Health Care Interventions.
Fthenou Eleni et al. Biopreservation and biobanking 2019 Dec 17(6) 491-493 - As Use of Genomic Data Expands in Cancer Care, Patients Share Their Stories
NCI, December 3, 2019 - Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data.
Middleton Anna et al. European journal of human genetics : EJHG 2019 Nov - DNA Data Marketplace: An Analysis of the Ethical Concerns Regarding the Participation of the Individuals.
Ahmed Eman et al. Frontiers in genetics 2019 101107 - The health information exchange has evolved from hunter and gatherer to cultivator
C Wiliams, Stat News, October 31, 2019 - Cooperating on Data: The Missing Element in Bringing Real Innovation to Europe's Healthcare Systems.
Horgan Denis et al. Public health genomics 2019 Oct 1-25 - The Veterans Precision Oncology Data Commons: Transforming VA data into a national resource for research in precision oncology.
Do Nhan et al. Seminars in oncology 2019 Oct
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