Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries. de Vries Jantina et al. BMC medical ethics 2017 Feb 18(1) 8

Public Health Genomics Knowledge Base (v1.2)




Last Posted: Feb 08, 2017

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• Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries.
  de Vries Jantina et al. BMC medical ethics 2017 Feb 18(1) 8
• Whose Biobank? Should Biobanks Serve Research Interests or the Needs for Personalized Medicine? Analysis of the Hungarian Law.
  Sándor Judit et al. Genetic testing and molecular biomarkers 2017 Jan
• Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts.
  Kaye Jane et al. Biopreservation and biobanking 2016 Jun 14(3) 201-6
• Lay Attitudes Toward Trust, Uncertainty, and the Return of Pediatric Research Results in Biobanking.
  Lynch John et al. AJOB empirical bioethics 2016 7(3) 160-166
• Access policies in biobank research: what criteria do they include and how publicly available are they? A cross-sectional study.
  Langhof Holger et al. European journal of human genetics : EJHG 2016 Dec
• Business Planning in Biobanking: How to Implement a Tool for Sustainability.
  Ciaburri Mirella et al. Biopreservation and biobanking 2016 Nov
• Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions.
  Smith Maureen E et al. BMC medical research methodology 2016 Nov 16(1) 162
• The alliance between genetic biobanks and patient organisations: the experience of the telethon network of genetic biobanks.
  Baldo Chiara et al. Orphanet journal of rare diseases 2016 Oct 11(1) 142
• "It's all about trust": reflections of researchers on the complexity and controversy surrounding biobanking in South Africa.
  Moodley Keymanthri et al. BMC medical ethics 2016 Oct 17(1) 57
• Biobank attributes associated with higher patient participation: a randomized study.
  Gayet-Ageron Angèle et al. European journal of human genetics : EJHG 2016 Oct
• Implementation of a Multicenter Biobanking Collaboration for Next-Generation Sequencing-Based Biomarker Discovery Based on Fresh Frozen Pretreatment Tumor Tissue Biopsies.
  Bins Sander et al. The oncologist 2016 Sep
• Engaging Māori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community engagement activities.
  Beaton Angela et al. Genetics in medicine : official journal of the American College of Medical Genetics 2016 Sep
• Ethics Reporting in Biospecimen and Genetic Research: Current Practice and Suggestions for Changes.
  Chin William Wei Lim et al. PLoS biology 2016 Aug 14(8) e1002521
• The Sangre Por Salud Biobank: Facilitating Genetic Research in an Underrepresented Latino Community.
  Shaibi Gabriel et al. Public health genomics 2016 Jul
• Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era.
  Chalmers Don et al. BMC medical ethics 2016 17(1) 39
• Ethical governance in biobanks linked to electronic health records.
  Caenazzo L et al. European review for medical and pharmacological sciences 2015 Nov 19(21) 4182-6

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