Public Health Grand Rounds on Tuesday, April 18, at 1:00 p.m. (ET)

Please join us for the next Public Health Grand Rounds, “National Amyotrophic Lateral Sclerosis (ALS) Registry -- Impact, Challenges, and Future Directions.” This session will be available via live webcastfrom CDC headquarters in Atlanta, Georgia on Tuesday, April 18, 2017 at 1:00 p.m. (ET).

Amyotrophic Lateral Sclerosis (ALS), sometimes called Lou Gehrig’s disease, is a rapidly progressive, fatal neurological disease caused by degeneration of motor neurons in the brain and spinal cord. Researchers don’t know what causes ALS and there is no cure. Approximately 80 percent of persons with ALS die within 2-5 years of diagnosis.

What is known is that ALS continues to be more common in whites, males and persons between the ages of 60-69. US military veterans are disproportionately affected. For example, veterans who served in the Gulf Region were twice as likely to develop ALS than those veterans deployed elsewhere during the same timeframe.

The National ALS Registry was created in 2010 to help scientists learns more about who gets ALS and what causes it. Persons with ALS can join the registry and complete brief surveys that help researchers understand possible risk factors for the disease, such as genetics, environmental, and occupational exposures. They also can choose to be alerted about research studies and clinical trials and have the option to contact the researchers to find out more.

Join us for this session of Public Health Grand Rounds as experts discuss the challenges for research, drug development, patient care, and the past, present and future of the national registry. Hear our panelist, Ed Tessaro, explain what it’s like to live with ALS.

CDC’s Public Health Grand Rounds Presents:

“National Amyotrophic Lateral Sclerosis (ALS) Registry Impact, Challenges, and Future Directions”

Tuesday, April 18, 2017

1:00 p.m. – 2:00 p.m. ET

Global Communications Center (Building 19)

Alexander D. Langmuir Auditorium

Roybal Campus

Presented By:

  

Kevin Horton DrPH, MSPH

Chief, Environmental Health and Surveillance Branch

Division of Toxicology and Human Health Sciences

Agency for Toxic Substances and Disease Registry (ATSDR)

“Overview of the National ALS Registry – Past, Present, Future”

Paul Mehta, MD

Principal Investigator, National ALS Registry

Environmental Health and Surveillance Branch

Division of Toxicology and Human Health Sciences

Agency for Toxic Substances and Disease Registry (ATSDR)

“The Known and Unknowns about ALS”

Edward J. Kasarskis, MD, PhD

Professor of Neurology

Cynthia Shaw Crispen Chair for ALS Research

University of Kentucky

“Challenges for Research, Drug Development, and Patient Care”

Ed Tessaro, BA

Person Living with ALS

“Living with ALS: a Patient’s Story”

   

   

Facilitated By:

John Iskander, MD, MPH, Scientific Director, Public Health Grand Rounds

Phoebe Thorpe, MD, MPH, Deputy Scientific Director, Public Health Grand Rounds

Susan Laird, MSN, RN, Communications Director, Public Health Grand Rounds

Our sessions are open to the public:

A live webcast will be available on our website. The link will be live five minutes before the presentation. View our sessions on our archive page at your convenience. Sessions are archived 3-4 days after each presentation.

For non-CDC staff who want to attend in person:

Non-CDC staff must have prior security clearance. US citizens must submit a request to the Grand Rounds Team. A US state-issued photo ID (e.g., driver’s license, US passport) is required. Non-US citizens must submit their requests 20 days prior to the session to the Grand Rounds Team, and additional information will be required.

For individuals requiring reasonable accommodations:

It is the policy of CDC to provide reasonable accommodations (RA) for qualified individuals with disabilities to ensure their full inclusion in CDC-sponsored events. Employees are asked to submit RA requests at least 5 business days prior to the event. Please e-mail the request to grandrounds@cdc.gov.

For questions about this Grand Rounds topic: Feel free to e-mail your questions before or during the session.

Grand Rounds is available for continuing education. 

All continuing education credit for Public Health Grand Rounds (PHGR) is issued online through the CDC/ATSDR Training and Continuing Education Online system. If you have questions, you can email Learner Support or call them at 1-800-41-TRAIN (1-800-418-7246). Those who view PHGR and wish to receive continuing education must complete the online seminar evaluation. Continuing education will be available for up to 2 years and 1 month after the initial offering. The course code for all PHGR sessions is PHGR10.

Target audience: physicians, nurses, epidemiologists, pharmacists, veterinarians, certified health education specialists, laboratorians, and others.

Objectives:

1. List key measures of burden of disease involving morbidity, mortality, and/or cost.
2. Describe evidence-based preventive interventions and the status of their implementations.
3. Identify one key prevention science research gap.
4. Name one key indicator by which progress and meeting prevention goals is measured.

 CE certificates can be printed from your computer immediately upon completion of your online evaluation. A cumulative transcript of all CDC/ATSDR CE credits obtained through the TCE Online system will be maintained for each user. We hope that this will assist CDC staff and other public health professionals in fulfilling the requirements for their professional licenses and certificates.

Learn more about continuing education on the Grand Rounds website.