Sharing rare data for a common cause

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Last Posted: Jan 12, 2018

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• Sharing rare data for a common cause  
  MRC Blog, Jan 10, 2018
• Adaptation and validation of the ACMG/AMP variant classification framework for MYH7-associated inherited cardiomyopathies: recommendations by ClinGen's Inherited Cardiomyopathy Expert Panel.  
  Kelly Melissa A et al. Genetics in medicine : official journal of the American College of Medical Genetics 2018 Jan
• Accessing your own genomic data is a civil right but requires strategies to manage safety  
  Medical XPress, Jan 4, 2018
• A community effort to protect genomic data sharing, collaboration and outsourcing.  
  Wang Shuang et al. NPJ genomic medicine 2017 233
• Precision Military Medicine: Conducting a multi-site clinical utility study of genomic and lifestyle risk factors in the United States Air Force.  
  Delaney Susan K et al. NPJ genomic medicine 2017 22
• "You want the right amount of oversight": interviews with data access committee members and experts on genomic data access.  
  Shabani Mahsa et al. Genetics in medicine : official journal of the American College of Medical Genetics 2016 Sep 18(9) 892-7

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