Personal Genomic Tests
Direct to Consumer Personal Genomics: Awareness and Ethical Issues - January 29, 2015
NCI paper: Public awareness of direct-to-consumer genetic tests: Findings from the 2013 U.S. Health Information National Trends Survey.
Agurs-Col lins T et al. J Cancer Educ. 2015 Jan 20.
Agurs-Col lins T et al. J Cancer Educ. 2015 Jan 20.
A new approach to assessing affect and the emotional implications of personal genomic testing for common disease risk.
O'Neill SC, et al. Public Health Genomics. 2015 Jan 21.
O'Neill SC, et al. Public Health Genomics. 2015 Jan 21.
Design, methods, and participant characteristics of the Impact of Personal Genomics (PGen) Study, a prospective cohort study of direct-to-consumer personal genomic testing customers.
Carere DA, et al. Genome Med. 2014 Dec 3;6(12):96
Carere DA, et al. Genome Med. 2014 Dec 3;6(12):96
Ethical considerations regarding classroom use of personal genomic information.
Parker LS, Grubs R. J Microbiol Biol Educ. 2014 Dec 15;15(2):191-6.
Parker LS, Grubs R. J Microbiol Biol Educ. 2014 Dec 15;15(2):191-6.
Personal genomes, participatory genomics and the anonymity-privacy conundrum.
Scaria V. J Genet. 2014 Dec;93(3):917-20
Scaria V. J Genet. 2014 Dec;93(3):917-20
Direct to consumer genetic testing—is all knowledge power? By Margaret McCartney, BMJ 2015; 350, 26 January 2015
By Margaret McCartney, BMJ 2015; 350, 26 January 2015Who should have access to your DNA? By Eric Topol, the Medium, Jan 22
By Eric Topol, the Medium, Jan 22Personal Genomic Tests: Ongoing Issues - December 11, 2014
Personal genome service launches in UK.
BMJ 2014;349:g7435
BMJ 2014;349:g7435
23andMe launches personal genome testing service in the UK, PHG Foundation, Dec 3
PHG Foundation, Dec 3The hidden harm behind the return of results from personal genome services: a need for rigorous and responsible evaluation.
Janssens AC. Genet Med. 2014 Nov 20.
Janssens AC. Genet Med. 2014 Nov 20.
Personal utility in genomic testing: is there such a thing?
Bunnik EM, et al. J Med Ethics. 2014 May 28
Bunnik EM, et al. J Med Ethics. 2014 May 28
Proposed regulatory framework for direct-to-consumer genetic testing: diagnostics vs genetic screening.
Dorfman R, et al. Clin Chem. 2014 Nov;60(11):1455-6
Dorfman R, et al. Clin Chem. 2014 Nov;60(11):1455-6
New statement and guidance for consumers on direct-to-consumer genetic testing, Australia,Medical News Today, Dec 11
Medical News Today, Dec 11More on Personal Genomics: Consumer Empowerment & Oversight - October 22, 2014
What is direct-to-consumer genetic testing? From the NIH Genetics Home Reference
From the NIH Genetics Home ReferenceEmpowering consumers through accurate genomic tests, Jeffrey Shuren, FDA Voice, Jun 26, 2014
Jeffrey Shuren, FDA Voice, Jun 26, 2014Consumer information on DTC genetic tests, US Federal Trade Commission, Jan 7, 2014
US Federal Trade Commission, Jan 7, 2014CDC blog post: Think after you spit-personal genomics and the teachable moment (2012)
CDC paper: Scientific Foundation for Personal Genomics- recommendations from an NIH -CDC Workshop
-CDC WorkshopRecent commentaries and insights
Changes on the horizon for consumer genomics in the EU
Louiza Kalokairinou et al. Science, October 17, 2014
Louiza Kalokairinou et al. Science, October 17, 2014
Direct-to-consumer genetic testing: a case of potential harm, by Nancy Fliesler, Vector, May 5
by Nancy Fliesler, Vector, May 5Why genetic self-test kits should not be allowed into Canada, by Abby Lippman, Special to The Globe and Mail, Oct 16
by Abby Lippman, Special to The Globe and Mail, Oct 16Personal genomics in Greece: An overview of available direct-to-consumer genomic services and the relevant legal framework.
Kechagia S, et al. Public Health Genomics 2014 Oct 1
Kechagia S, et al. Public Health Genomics 2014 Oct 1
Personal utility in genomic testing: is there such a thing?
Bunnik EM, et al. J Med Ethics 2014 May
Bunnik EM, et al. J Med Ethics 2014 May
Gatekeepers or intermediaries? The role of clinicians in commercial genomic testing.
McGowan ML, et al. PLoS One. 2014 Sep 26;9(9):e108484
McGowan ML, et al. PLoS One. 2014 Sep 26;9(9):e108484
How a Wiki is keeping direct-to-consumer genetics alive, by Antonio Regalado, MIT Technology Review, Oct 19
by Antonio Regalado, MIT Technology Review, Oct 19Personal Genomics: Science, Oversight and Consumer Empowerment - July 2, 2014
Empowering consumers through accurate genomic tests, Jeffrey Shuren, FDA Voice, Jun 26
Jeffrey Shuren, FDA Voice, Jun 26Consumer information on DTC genetic tests, US Federal Trade Commission, Jan 7
US Federal Trade Commission, Jan 723andMe co-founder Anne Wojcicki's Washington charm offensive, by Ariana Eunjung Cha, Washington Post, Jun 27
by Ariana Eunjung Cha, Washington Post, Jun 27Personal utility in genomic testing: is there such a thing?
Bunnik EM, et al. J Med Ethics 2014 May
Bunnik EM, et al. J Med Ethics 2014 May
Personal utility and genomic information : look before you leap.
Grosse et al. Genetics in Medicine (2009)
Grosse et al. Genetics in Medicine (2009)
CDC blog post: Think after you spit-personal genomics and the teachable moment (2012)
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